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  1. Mij

    UK Times and Independent on ME misdiagnosed as Lyme disease, August 2023

    Exactly this. My dear friend who passed away from M.E complications followed the same protocol. He had a PICC line for 9 months and shoved abxs down his throat for years and slowly deteriorated. The course of abxs destroyed his gut.
  2. Mij

    UK Times and Independent on ME misdiagnosed as Lyme disease, August 2023

    I found this interesting: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5848374/
  3. Mij

    Characteristics and Treatment of Exercise Intolerance in Patients With Long COVID, 2023, Edward et al

    No thanks. CBT helped me learn to identify, question and change how my thoughts, attitudes and beliefs related to my emotional and behavioural reactions. I'm cured!!
  4. Mij

    UK Times and Independent on ME misdiagnosed as Lyme disease, August 2023

    I also have an issue with M.E 'tests' and whether they are accurate. I feel it relies and based on the knowledge, experience of the physician and history records of the patient.
  5. Mij

    New insights into the physiology and pathophysiology of the atypical sodium leak channel NALCN, 2023, Arnaud Monteil et al

    Abstract Cell excitability and its modulation by hormones and neurotransmitters involve the concerted action of membrane proteins, especially ion channels. Unique complements of co-expressed ion channels are exquisitely balanced against each other in different excitable cell types, establishing...
  6. Mij

    Decitabine disrupts EBV genomic epiallele DNA methylation patterns around CTCF binding sites to increase chromatin accessibility . . . gastric cancer,

    Full Title: Decitabine disrupts EBV genomic epiallele DNA methylation patterns around CTCF binding sites to increase chromatin accessibility and lytic transcription in gastric cancer, 2023, Sarah Preston-Alp et al Abstract Epstein-Barr virus (EBV) is associated with 10% of human gastric...
  7. Mij

    Do the findings in LC suggest two distinct phases for ME/CFS onset?

    Taking Immunovir for 3 weeks reactivated both HHV6 and EBV that caused a terrible relapse when I was feeling 90% after 10 yrs of M.E. I developed OI and lowered my baseline permanently.
  8. Mij

    Neuroimaging markers of Alice in Wonderland syndrome in patients with migraine with aura, 2023, Giulio Mastria et al

    Background: The Alice in Wonderland syndrome (AIWS) is a transient neurological disturbance characterized by sensory distortions most frequently associated with migraine in adults. Some lines of evidence suggest that AIWS and migraine might share common pathophysiological mechanisms, therefore...
  9. Mij

    Do the findings in LC suggest two distinct phases for ME/CFS onset?

    I'm in the relapsing remitting subgroup. I felt recovered after resting for 9 months during PVFS, but after less than a month of returning to work, I could no longer stand upright (not OI) or walk a straight line. Rested for the following 5.5 years and started feeling 90% improvement...
  10. Mij

    Post-COVID symptoms are associated with endotypes reflecting poor inflammatory and hemostatic modulation, 2023, Andy Yi An et al

    Introduction: Persistent symptoms after COVID-19 infection (“long COVID”) negatively affects almost half of COVID-19 survivors. Despite its prevalence, its pathophysiology is poorly understood, with multiple host systems likely affected. Here, we followed patients from hospital to discharge and...
  11. Mij

    New NICE Guideline Published : Vitamin B12 deficiency in over 16s: diagnosis and management

    Years ago my B12 level was just above 200 but my GP didn't feel it was serious even after I told her my tongue felt numb. I took 1000 mcg methylcobalamin supplements for 6 months and the numbness/tingling disappeared. I got retested 6 months later and the receptionist called to tell me...
  12. Mij

    Muscle strength is reduced for hours after light exercise

    I've been doing 4-5 lb arm muscle reps (25 up to 75) lifts through out the day every day the last 2 weeks. I'm feeling ok with this. I'm also trying 20-40 squats through out the day, no negative after effects so far. I'm also training myself by doing pike leg lifts using my core...
  13. Mij

    Covid-19 vaccines and vaccinations

    Herpes zoster mRNA vaccine induces superior vaccine immunity over licensed vaccine in mice and rhesus macaques https://www.biorxiv.org/content/10.1101/2023.08.16.553640v1
  14. Mij

    Newly uncovered biochemical and functional aspects of ferritin, 2023, Yanatori et al.

    My understanding is that low ferritin is the cause of iron deficiency anaemia, but not the cause of anaemia.
  15. Mij

    Newly uncovered biochemical and functional aspects of ferritin, 2023, Yanatori et al.

    My doctor couldn't understand why this occurred either. His response was "where does it go?" Low ferritin started after getting M.E.
  16. Mij

    Potential game changer for persons with Chronic Illnesses

    Making it more affordable for Americans to buy drugs.
  17. Mij

    Venous insufficiency and acrocyanosis in long COVID: dysautonomia, 2023, Iftekhar & Sivan

    "He reported accompanying symptoms of feeling foggy and shaky, having tingling, itchiness, and heaviness in his legs: findings consistent with a diagnosis of POTS". I have/had neurally mediated hypotension, my blood pools to my feet, legs turn blotchy purple and I felt shaky during the early...
  18. Mij

    Venous insufficiency and acrocyanosis in long COVID: dysautonomia, 2023, Iftekhar & Sivan

    He had a mild SARS-CoV-2 infection, confirmed by PCR, 18 months before we saw him, with a suspected further SARS-CoV-2 infection 6 months later. He had been diagnosed with post-COVID-19 condition (also known as long COVID) in a specialist clinic 3 months before we saw him—reporting a 12-month...
  19. Mij

    A germ-free humanized mouse model shows the contribution of resident microbiota to human-specific pathogen infection, 2023, Angela Wahl et al

    “Will the gut microbiome also influence reactivation of herpes simplex virus, shingles, and other latent viruses that cause tumors? We don’t know, but there’s a pretty good track record that microbes can influence certain bacterial and fungal pathogens. That may be something to explore as well,”...
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