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  1. rvallee

    Functional neurological disorder, physical activity and exercise: What we know and what we can learn from comorbid disorders, 2024, Reinsberger et al

    Functional neurological disorder, physical activity and exercise: What we know and what we can learn from comorbid disorders https://www.sciencedirect.com/science/article/pii/S258998642400039X#b0285 Highlights Physical activity has not been studied in functional neurological disorder (FND)...
  2. rvallee

    Comparison of measures of functional capacity and the way the questions are worded to take into account ME/CFS limitations

    This mostly emphasizes how pointless creating another PROM really is. Most of the problems aren't with the questionnaires themselves, or even the questions, they're with acceptance and interpretation. They're so similar. The SF-36 is the most standard one used, or one of the, and results from...
  3. rvallee

    COVID-19: When It Leaves Us Voiceless and Powerless, 2024, Yee et al.

    Rarely has a bad idea survived for this long, to the point where it can arc between antiquity and the space age and the rise of AI. It's really impressive. In a bad way, but still.
  4. rvallee

    News from Austria and Switzerland

    Tweet from Dossier, which bills itself as investigative and data journalism: Features a predictable reaction from the German Wessely, Kleinshnitz, who is not outraged at the abuse patients get, but is at anyone who reports this abuse: Can't read what it says, I'm blocked by this account even...
  5. rvallee

    Review What Is Mental Effort: A Clinical Perspective, 2024, Wolpe et al.

    Somewhat, but I don't think it makes it a useful definition. Mental effort is obviously subjective, mostly how much effort someone is putting into something, but it can be objectively measured. Not well, but it definitely can. The main problem is not here, it's in the notion of whether that...
  6. rvallee

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    It's the lies that bother me the most. That almost everything they say about us is either lies, or allusions to things that are also lies. If it were all true, I wouldn't mind any of it. But it's all false. And it reveals the lengths to which medical professionals can go in the promotion of...
  7. rvallee

    News from Austria and Switzerland

    Training with side effects ME/CFS and post-Covid are new territory for many medical professionals. This makes continuing education all the more important. But sometimes the content taught can be harmful to patients. https://www.dossier.at/dossiers/aktuelles/fortbildung-mit-nebenwirkungen/ For a...
  8. rvallee

    Effectiveness of in-group versus individually administered pain neuroscience education on clinical and psychosocial outcomes..., 2024, Fuentes et al

    Posted because this is essentially the PACE model applied to chronic back pain: fear avoidance, catastrophizing, self-efficacy, and so on. And this is really why there is so much pushback, why Cochrane can't retract the exercise review. The house of cards just keeps growing up, so the cards that...
  9. rvallee

    Effectiveness of in-group versus individually administered pain neuroscience education on clinical and psychosocial outcomes..., 2024, Fuentes et al

    Effectiveness of in-group versus individually administered pain neuroscience education on clinical and psychosocial outcomes in patients with chronic low back pain: randomized controlled study protocol https://peerj.com/articles/17507/ Objective (1) This trial will compare the clinical and...
  10. rvallee

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Odds that it's all grabbed by biopsychosauruses and thus entirely wasted? I'd say 3:1. But, hey, we could get lucky, and they could only end up grabbing 3/4 of it, leaving a bit for real science.
  11. rvallee

    Standards for randomized controlled trials of efficacy of psychological treatments, 2024, Mohr

    But, really, exactly how many angels can dance on a hairpin? This is the true question of our time. Surpassing all other issues. If this is any indication of the state of self-reflection about randomized psychological trials, things are not going to change any time soon. And by that I mean that...
  12. rvallee

    GPT for ME/CFS Questions

    Since there will be better solutions on a regular basis, the most useful work IMO would be to build a vetted catalogue of documents and resources to serve as a base. This way if a new tool comes up that can be easily trained, all that would be required is to give it this list of resources and it...
  13. rvallee

    [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?

    It sure would be great if there was a better term, because it's a really important concept. I don't think it's common in English, but in French it's often used to mean a really bad medical event, most often a cardiac event. It's definitely sometimes used to refer to a state of intense weakness...
  14. rvallee

    News from Canada

    Sometimes questions just answer themselves: Mental health services aren't an option in most of those cases. They could be scarce, they could be plentiful, and it wouldn't change anything, because they have nothing to do with the problem. Solutions have to at least relate to the problem, to be...
  15. rvallee

    USA: News from #MEAction

    There are two versions of the survey. It can be cut short after a few questions, or continued for a total of 40-60 minutes. But it's super easy to come back to it, I just kept a pinned tab (a bookmark would work) and it just loaded back to where I was last.
  16. rvallee

    GPT for ME/CFS Questions

    It's not the only option, but OpenAI has a system to train specialist models. I don't know what it involves but it should be possible to do something like this soon enough. So the idea already exists, I just don't know how much work would be involved and how much it would cost. And if it's...
  17. rvallee

    The economist: Many mental health conditions have bodily triggers

    I'd be surprised if it was less than 90%, probably up to 99%. Most of it depends on what mental illness even means, and this is where most of the problem lies. Probably by the middle of it the very concept will be unrecognizable, and different still by the end. Not sure if it's a hot take, but...
  18. rvallee

    The risks of autoimmune- and inflammatory post-acute COVID-19 conditions: a network cohort study in six European countries, the US, and Korea, 2024,

    Most comments from and about MDs I see out there reflect that they do see it, but blame the tiktoks and the social medias and other newfangled brain-altering technologies. I guess they moved on from blaming Dungeons & Dragons and bicycles. Even though POTS is the easiest to diagnose of the...
  19. rvallee

    News from the USA, United States of America

    Not sure if he said similar things to the senate health committee, but giving the same information to a different house committee may have some effect in making more elected officials aware of the problem. The more they hear it from different sources, the more it impresses on how significant the...
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