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  1. rvallee

    Medscape: If It Feels Like Fibromyalgia? 'It Probably Is' - Fibro article linked to from MEA facebook

    Hasn't it been shown that surveys of, well actually all specialists, show that actually they don't? Most reject referrals for this, this is something that would be easily knowable, if there was motivation to organize that information. Which there isn't. Because it's embarrassing, and not knowing...
  2. rvallee

    The Effect of Physiotherapy on Dyspnea, Muscle Strength and Functional Status in Patients with Long COVID Syndrome 2024 Michalas et al

    Well if the problem was specifically about doing those specific exercises and how much people can lift, which it isn't, it still wouldn't amount to much as the differences are trivial and basically have nothing to do with the problem. Might as well have people train with yo-yos and report that...
  3. rvallee

    Long COVID-19 Enigma: Unmasking the Role of Distinctive Personality Profiles as Risk Factors, 2024, Amsterdam et al.

    Ah, yes, the scam equation: 0 = 0 = effective = give us more money It's literally a coin toss and they could get similar results using astrological signs or Meyers-Briggs profiles, but as always, their conclusion is give us more money. There is no validity to personality profiles, they're as...
  4. rvallee

    BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program

    And this is for the same reason why claims of drinking urine being good for this or that shouldn't be amplified. Or some potent drug. Or thoughts and prayers, spiritual awakenings, psychic séances and anything and everything else. One of the most frustrating things so far from LC has been how...
  5. rvallee

    The Association of Central Sensitisation with Depression, Anxiety, and Somatic Symptoms: A Cross-Sectional Study of... 2024 Takeuchi et al

    Asking overlapping questions yields overlapping answers. Even more so when done with intent and purpose. Who knew?! How any of this has anything to do with the mechanism of this CSS thing is just baffling. I mean look at this, it's been a trend lately: More food plates is associated with more...
  6. rvallee

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    I don't think the 'study' deserves its own thread, it's just a huge muddle of academic echo chamber brain rot that tries to pin brain fog on pandemic measures, using very odd language that reminds me of microeconomics 101 classes and models of 'homo economicus', simplified models meant only for...
  7. rvallee

    Cognitive behavioural therapy for adults with dissociative seizures (CODES): a ... multicentre, randomised controlled trial (2020) Goldstein, Chalder

    Somatic symptoms and related disorders in clinical practice Psychogenic Non-epileptic Seizures: An Update on Diagnosis and Management https://www.intechopen.com/online-first/1186691 Reference is this pilot study. The disinformation mill in medical research is impressive. It's hard to accept...
  8. rvallee

    USA: Senate NIH appropriations hearing May 23, 2024

    Some of the advocates present at the hearing made it because someone organized travel and planning. This kind of thing is surprisingly important when it comes to advocacy, to make it clear that there is demand in the public for this. Bodies on the ground often matter more than most other...
  9. rvallee

    Moderna’s long Covid plan

    Repurposing existing drugs is unlikely to come from pharmaceutical companies, they make more money from newer drugs. They'd be happy to sell them, but all their incentives go against bothering with that. This is really the bind here: drug trials are usually done by pharmaceutical companies, not...
  10. rvallee

    Using co-design methods to develop new personalised support for people living with Long Covid: The ‘LISTEN’ intervention, 2024, Jones et al.

    Seems mostly fine, other than there being zero awareness of the chronic illnesses that make up LC, but framing this as an intervention is all wrong. It should not be expected to be effective, it's just basic knowledge that will not cause harm, but shouldn't be expected to do much good, other...
  11. rvallee

    A metabolic dependency of EBV can be targeted to hinder B cell transformation, 2024, BOJANA MÜLLER-DUROVIC et al

    https://scitechdaily.com/turning-the-tide-against-epstein-barr-virus-with-repurposed-drugs/ Researchers led by Professor Christoph Hess have deciphered how the immune cells infected with EBV —the so-called B cells — are reprogrammed. Known as “transformation,” this process is necessary for the...
  12. rvallee

    Review Prevalence of mental health conditions and brain fog in people with long COVID, 2024, van der Feltz-Cornelis et al

    Combining those make no sense. Even worse that most "mental health" is mostly misattribution of symptoms, always in one preferred direction even though it makes the least sense. Especially given the diminished prevalence from vaccination, which clearly points to immunological factors where...
  13. rvallee

    Psychological Therapy for [FND]: Examining Impact on Dissociation, Psychological Distress and General Functioning 2024 Esteban-Serna, Pick, Cope et al

    They have no idea what they're talking about. They just hear and parrot words but don't know what they mean, might as well use number codes for all that it matters. "Oh you got symptom #23 and a bit of #17, hmmm, yes I'm familiar with those codes" For sure it's a common consequence, but it's...
  14. rvallee

    BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program

    Good one. Seems relevant to point out that in what I hoped would be a thread documenting silly antics that would soon die off, the very first MD I noticed denying against Long Covid was Henrik Vogt, of LP fame. I have no doubt that in some places, most likely Norway, thousands of people have...
  15. rvallee

    Masks and respirators for prevention of respiratory infections: a state of the science review, 2024, Greenhalgh et al

    I think this sums up the problem with evidence-based medicine as well as anything. Prasad has been pretty much wrong about everything during and since the pandemic, he actually serves as a reliable reverse seer. He has also been pushing awful disinformation, is against any disease control...
  16. rvallee

    USA: Senate NIH appropriations hearing May 23, 2024

    Well, that's a lot of good talk. Let's hope we see some walking. Because damn if it doesn't come to pass, and years down the line some tiny private lab funded by patients ends up producing the breakthrough that ends the stalemate and this is all on record, again, showing how they know it's...
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