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  1. rvallee

    UniteToFight2024 Long Covid and ME/CFS conference, 15th and 16th May 2024

    Some negative responses on twitter to this announcement, some of it is legitimate, but this isn't like psychosomatic ideologues, I think it's better to involve people with significant influence than it is to shoo them away.
  2. rvallee

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    Geez that's high on the WTF!? index. Fear of retirement? Is there any imaginary fear they can't exploit? They've pretty much nearly covered all the types that can be imagined at this point. Especially when you consider that retirement is often the thing most soldiers look forward too. Not all...
  3. rvallee

    Sense about Science: Join our talks on science, scepticism and free speech (Garner et al)

    Also interesting that it usually comes from people who never have trouble finding a platform to speak from, about things that have always been a dominant force in society, awash in resources and institutional support. What they want is simply for people harmed by their actions and behaviors to...
  4. rvallee

    A body–brain circuit that regulates body inflammatory responses 2024 Jin et al

    I was under the impression that, maybe not with such high precision, this was already known. I guess what's significant is finding where and how? Or something like that. Or maybe the significance of vagus neurons in this process. Although I'm annoyed by the odd body-brain framing, last I...
  5. rvallee

    Measuring persistent somatic symptom related stigmatisation: Development of the Persistent Somatic Symptom Stigma scale for (HCPs), 2024, olde Hartman

    I didn't dig into it much, but at first glance it's actually not clueless. But seeing Jon Stone and how utterly bizarre it is that in response to this whole concept being discriminatory, their solution is to create yet another questionnaire to assess that discrimination, on some bases that are...
  6. rvallee

    Measuring persistent somatic symptom related stigmatisation: Development of the Persistent Somatic Symptom Stigma scale for (HCPs), 2024, olde Hartman

    Measuring persistent somatic symptom related stigmatisation: Development of the Persistent Somatic Symptom Stigma scale for healthcare professionals (PSSS-HCP) Brodie McGhie-Fraser, Caoimhe McLoughlin, Peter Lucassen, Aranka Ballering, Sandra van Dulmen, Evelien Brouwers, Jon Stone, Tim olde...
  7. rvallee

    News from France

    France, but also bits of Luxemburg. Basically an app to track symptoms, looks kind of similar to Visible. It seems to have been built to work with health care, but haven't looked into how well, in association with France's biggest Long Covid community, Après J20 (after day 20).
  8. rvallee

    2024: NIH National Institutes of Health - ME/CFS Symposium on Intramural study - 2 May

    Criticism between academics is basically the norm. This isn't kindergarten, spit will fly and tempers will flare, this is all normal. In fact finding weirdly positive collegiality is basically a sign that things are, let's go with fucky. I think that what they're not used to is laypeople giving...
  9. rvallee

    2024: NIH National Institutes of Health - ME/CFS Symposium on Intramural study - 2 May

    Don't know which way he meant it, but I'd say that I fully agree with the more reasonable interpretation that we need better advocates within the medical profession and the academic community. We need more of them, and better ones. Which Long Covid has given us, but not nearly enough to overturn...
  10. rvallee

    2024: NIH National Institutes of Health - ME/CFS Symposium on Intramural study - 2 May

    That is really impossible to accept. By definition a healthy volunteer cannot have POTS. POTS is rather rare, it's actually hard to find people with POTS, although mostly because of systemic opposition to its existence, but also because of how ridiculously unlikely it is that someone with POTS...
  11. rvallee

    UK Parliament: Westminster Hall debate on ME/CFS, Wednesday 1st May 2024, 16.30 - 17.30

    Hard to say whether it will make any difference, but having it all on legislative record, again, will matter in the long term. Once the lie can no longer be maintained and people start looking at why and how it happened, it will not be possible for anyone involved to say that they didn't know...
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