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I agree, Prof Georg Schomerus seems to be an example of a good psychiatrist. I liked many of his points, one I remember is that medical professionals have been incentivised to make decisions quickly and get people out the door, rather than to exercise curiosity.

This study made it on to the news on the radio and I've come here to find out more. I had the same reaction to the news item - there was nothing said about what was different with people with Long Covid and yet it was hailed as some important advance that would lead to a treatment. I hoped...

No controls, patients in the first couple of years of Long Covid, subjective outcomes = no useful information And I think there are more problems, but those are enough.

Spa therapy (from the Introduction):

Another thought - testing this questionnaire on people who have had ME/CFS for some time and who have an idea of what symptoms they are supposed to have is not sufficient for working out if it will work for people with a recent onset. I so agree with others who have questioned how this online...

:) I think many people with my level of severity would be okay doing 8 minutes of cycling. The large numbers of people who have done the two day CPET tests in the limited places where those tests are offered are proof of that. But sure, these studies are recruiting people with a certain level of...

There are so many problems with this question. First, the definition of PEM. There is no distinction made between fatiguability and PEM. There is no distinction made between some fatigue and pins and needles for 10 minutes after hanging out the washing, a crash requiring a day in bed, and...

I don't think the first bit is true. Many people with ME/CFS sometimes trade off function at one important point in time for PEM later. I expected PEM and did a two day CPET test anyway. The desire to find the answer, to have your diagnosis validated or not, to help progress towards treatments...

Mike's pre-marathon interview with Vasilije of Montenegro: Mike's EU Marathons Basically, no patient organisations, no useful understanding of ME/CFS among doctors, no eligibility for social welfare.

Thanks to Mike and Vasilije for the information. It's sad to hear that things are so difficult.

Thanks Murph for copying the eligibility notification. I think we concluded on the other thread that, yes, the researcher has a background in promoting exercise, but that they are aware of the specifics of ME/CFS and do have connections with researchers who understand ME/CFS better than most...

Ref 6: Bramante, C. T. et al. Outpatient treatment of COVID-19 and incidence of post-COVID-19 condition over 10 months (COVID-OUT): a multicentre, randomised, quadruple-blind, parallel-group, phase 3 trial. Lancet Infect. Dis. https://doi.org/10.1016/S1473-3099(23) 00299-2. The forum thread on...

Basically no difference in the time taken to return to baseline number of steps after Covid-19 infection (Edit - !! - i.e. absolutely no evidence for those diagrams of the Vicious Cycle, or reduced effort preferences.) See Table 1 From Table 1: Of the 279 people with Long Covid, only 33 (11.8%)...

Thanks Mij. Change in resting heart rate Change in steps (red=LC; blue = recovered) Change in sleep It's a shame that the definition of Long Covid is so loose. I haven't yet read the whole study to see if there might be other problems. Maybe there are seasonal impacts on activity levels...

This seems worth talking about a bit. ANZMES could choose to be an Incorporated Society, in which case it would continue to be accountable to its members and officers would be elected. It has however chosen to be a Charitable Trust Board. The Trustees choose themselves, and later choose...

RESULTS Part B Convalescent samples: NeuroPASC samples: I'm not sure that we should be too excited by these results. The sample size at 20 in each group is small. Not a single MDP or cytokine was significantly different between the two groups (see Table 2). So, they have turned to...

A correlation between physical activity and a molecule doesn't prove much. As you say, the levels of the molecule might be an indication of disease, and the disease might be causing inactivity. But, if the 'ME/CFS' group and the healthy group both have the same relationship between levels of...

I agree with most of this. The paper does need reworking. As you say, we need graphs of actual values (with separate charts for male/female, and adjustments for age if appropriate). I don't have a background in advanced statistics, so I say the following with much hesitation and willingness to...

It is a question we wrestle with in the moderation team. I don't think it's just a question of being tidier. If someone wants to think about biomarkers and diagnostic tests, it seems sensible to direct them to a thread where other useful points may have been made. If people want to understand...

RESULTS Part A I can't see how many of the 165 patients were labelled as having long COVID for the Part A analysis - can anyone find that? That's interesting, no sex bias in the development of long COVID, although perhaps the sample was too small and Long Covid is defined loosely. So, they...