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  1. Hutan

    ME Epidemiology - prevalence and peak ages of onset

    We have split off posts primarily about sex ratios to a new discussion thread dedicated to that topic: ME/CFS Epidemiology - sex ratios, female predominance
  2. Hutan

    ME/CFS Epidemiology - sex ratios, female predominance

    There is the interchangeability of the ME and CFS diagnoses, and the varying popularities of the two diagnoses over time. It seems likely to me that the higher prevalence of an ME diagnosis aged 80+ could be explained by those people receiving that diagnosis back in the 1980s, when they were in...
  3. Hutan

    News from Germany

    The English translation is often pretty loose. There's obviously a lot of jibes and jokes where you need a bit of German background, but so many good points are made. Satire is such an effective tool for changing/creating public opinion.
  4. Hutan

    UK: British Psychological Society survey on their planned new guidance on ME/CFS, deadline 9th October 2024

    This is a fantastic initiative, I hope it will help to ensure that there is safe professional psychological support for people with ME/CFS and similar conditions who want it. It would be wonderful to have a good resource to direct people to. Great to see the process includes lots of...
  5. Hutan

    Replicated blood-based biomarkers for Myalgic Encephalomyelitis not explicable by inactivity, 2024, Beentjes, Ponting et al

    Not sure if that is a question, but no, no posts were moved but I did another post on that topic here: ME Epidemiology - prevalence, peak ages of onset and gender ratio I totally agree with @Ravn about the Introduction and the lack of a need to get into the details of ME/CFS epidemiology. I...
  6. Hutan

    Two-Year Longitudinal Study Reveals That Long COVID Symptoms Peak and Quality of Life Nadirs at 6–12 Months Postinfection, 2024, Demko et al

    Abstract Background Few longitudinal studies available characterize long COVID outcomes out to 24 months, especially in people with nonsevere acute coronavirus disease 2019 (COVID-19). This study sought to prospectively characterize incidence and duration of long COVID symptoms and their...
  7. Hutan

    Post-Acute Sequelae of COVID (PASC or Long COVID): An Evidenced-based Approach, 2024, Griffin

    On the idea that most people improve and even recover in the first two years: 43 Servier, C., Porcher, R., Pane, I., Ravaud, P. & Tran, V.T. Trajectories of the evolution of post- COVID-19 condition, up to two years after symptoms onset. Int J Infect Dis 133, 67-74 (2023). Forum thread French...
  8. Hutan

    Trajectories of the evolution of post-COVID-19 condition, up to two years after symptoms onset, 2023, Server et al

    Abstract Objectives: We aimed to identify trajectories of the evolution of post-COVID-19 condition, up to 2 years after symptom onset. Methods: The ComPaRe long COVID e-cohort is a prospective cohort of patients with symptoms lasting at least 2 months after SARS-CoV2 infection. We used...
  9. Hutan

    Prevalence and impact of persistent symptoms following SARS-CoV-2 infection among healthcare workers: a cross-sectional survey..., 2024, Foulkes et al

    Results Just because gender ratios are top of my mind at the moment: I do think the tendency for women to be in public facing roles with a high exposure to infections, such as nursing and teaching, may influence ME/CFS sex ratios. Contrast general ME/CFS with Q fever fatigue syndrome. Farmers...
  10. Hutan

    ME/CFS Epidemiology - sex ratios, female predominance

    From a discussion on another thread about a claimed sex ratio in ME/CFS of 5 to 1: I know the issue of sex ratios issue isn't very important in a paper about biomarkers, but there are good reasons to try to get it as right as possible in published papers. I'm a bit surprised about the belief...
  11. Hutan

    Replicated blood-based biomarkers for Myalgic Encephalomyelitis not explicable by inactivity, 2024, Beentjes, Ponting et al

    So as to not take the thread off topic, I'll address the arguments about the sex ratio used in this paper on the epidemiology discussion thread. ME/CFS Epidemiology - sex ratios, female predominance
  12. Hutan

    Replicated blood-based biomarkers for Myalgic Encephalomyelitis not explicable by inactivity, 2024, Beentjes, Ponting et al

    But we can't assume that the voluntary response to a mail-in study is the same as population prevalences. See this study for example. Men might be less likely to be diagnosed with ME/CFS, less likely to network with others with the disease and so hear about the study, and less likely to...
  13. Hutan

    ME/CFS Epidemiology - sex ratios, female predominance

    Copied post But we can't assume that the voluntary response to a mail-in study is the same as population prevalences. See this study for example. Men might be less likely to be diagnosed with ME/CFS, less likely to network with others with the disease and so hear about the study, and less...
  14. Hutan

    Replicated blood-based biomarkers for Myalgic Encephalomyelitis not explicable by inactivity, 2024, Beentjes, Ponting et al

    Five to one is a very high ratio. Yes, it says 'up to five-to-one', which covers a lot of ground, but still. I don't think it gives an accurate representation of what we know. You yourself (Simon) said this on the epidemiology thread, suggesting a ratio of 3 to 1 or 4 to 1. The first meta...
  15. Hutan

    ME/CFS Epidemiology - sex ratios, female predominance

    Posts copied from Replicated blood-based biomarkers for Myalgic Encephalomyelitis not explicable by inactivity, 2024, Beentjes, Ponting et al Five to one is a very high ratio. Yes, it says 'up to five-to-one', which covers a lot of ground, but still. I don't think it gives an accurate...
  16. Hutan

    Replicated blood-based biomarkers for Myalgic Encephalomyelitis not explicable by inactivity, 2024, Beentjes, Ponting et al

    Yes, and even then, it only suggests that rather than shows it, with there not being any clear biomarker. There is not yet any smoking gun here.
  17. Hutan

    Replicated blood-based biomarkers for Myalgic Encephalomyelitis not explicable by inactivity, 2024, Beentjes, Ponting et al

    I agree Kitty. That first paragraph of the paper seemed to me to be giving the question of physical inactivity undue weight. It also seemed to be taking an overly negative view of exercise. People with cardiovascular disease are in fact often encouraged to be active and even to do some...
  18. Hutan

    Managing fatigue transdiagnostically: a qualitative study among people with chronic conditions on optimizing daily activity, 2024, Hettinga et al

    Not sure I can add much to @rvallee's spot-on analysis. But 'promising'? Pretty much everyone with a disease like ME/CFS works out a version of 'activity pacing' in the first 6 months. People give up things, often very important things, in order to reduce the activity they do. It's not news...
  19. Hutan

    Replicated blood-based biomarkers for Myalgic Encephalomyelitis not explicable by inactivity, 2024, Beentjes, Ponting et al

    Is that a typo in the abstract? Should it be Of 3,237 traits considered, ME status restricted activity had a significant effect on only one, via the "Duration of walk" ?
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