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  1. Hutan

    Help needed: Send messages to Hungarian pwME for my ME Awareness Day project

    Nice idea @Wyva Warm greetings to people with ME/CFS and their supporters in Hungary. There is no credible evidence that it's possible to cure ME/CFS by thinking better thoughts, being more positive or exercising. Anyone suggesting otherwise has not kept up with the scientific literature. Kia...
  2. Hutan

    Long COVID Optimal Health Programme (LC-OHP) to enhance psychological and physical health: a feasibility randomised ... protocol, 2022, Al-Jabr et al

    Stand by for a bigger more expensive trial: These are the organisations that funded the study - clearly they need some advice on trial design.
  3. Hutan

    Long COVID Optimal Health Programme (LC-OHP) to enhance psychological and physical health: a feasibility randomised ... protocol, 2022, Al-Jabr et al

    Ha, it seems people with Long Covid are regarded as too befuddled to contribute to the study design. Patient and public involvement The OHP was tailored to long COVID with input from the long COVID clinic clinicians (two occupational therapists). In addition, guidance was provided on the mode...
  4. Hutan

    Long COVID Optimal Health Programme (LC-OHP) to enhance psychological and physical health: a feasibility randomised ... protocol, 2022, Al-Jabr et al

    Hiyam Al-Jabr 1 Karen Windle 1 David R Thompson 2 Zoe Jenkins 3 David J Castle 4 Chantal Ski 1 1 Integrated Care Academy University of Suffolk Ipswich GB 2 School of Nursing and Midwifery Queen’s University Belfast Belfast GB 3 Mental Health Service St Vincent's Hospital Melbourne AU 4...
  5. Hutan

    Magnesium

    Interpreting Magnesium Status to Enhance Clinical Care – Key Indicators, 2017 That paper is interesting, especially if you were planning an Mg supplementation study. There's a good analysis of various ways of determining Mg status (deficiency or otherwise), and also of the time taken for...
  6. Hutan

    Magnesium

    While it's true that something labelled 'food grade' is likely to be purer than something that isn't, it seems it isn't the contaminants that is causing the stinging. The linked retailer of the food grade Mg chloride notes 'avoid sensitive skin areas to reduce stinging sensation'. That...
  7. Hutan

    Magnesium

    Yes, a mild burning feeling. So, apparently you can make your own magnesium oil from a cup of magnesium chloride crystal dissolved in a cup of distilled water. That's pretty concentrated. But, there are Safety Data Sheets for Magnesium chloride solutions. When it's not packaged up with...
  8. Hutan

    Magnesium

    About the burning sensation, I've had that too. I bought a bottle of magnesium oil and tried it - and then did some research and became disillusioned and sprinkled the rest round my citrus trees. Just like the lack of evidence for MgCl solutions being absorbed, I haven't yet found a good...
  9. Hutan

    Magnesium

    Dr Shealy has a website selling magnesium solutions, among other things. He looks pretty dodgy, although I guess that doesn't mean products he has promoted necessarily are useless. Among the products are the Bliss range I don't know, maybe? It's just that I can't find convincing studies to...
  10. Hutan

    Magnesium

    Mij, that study is the one I mentioned first in my post above. Dr Shealy is the founder of the Americas Holistic Medical Association. According to the paper I quoted, his study was only published as an abstract at a conference. It wasn't published in a journal with peer review. And it's...
  11. Hutan

    News from Southeastern Europe

    http://www.europeanmealliance.org/index.shtml Linking EMEA (the European ME Alliance) here. They currently have pages with contact details for Croatia: ME Association in Croatia Serbia: Association of People with Chronic Fatigue Syndrome in Serbia Slovenia: Zebra Patients' Association
  12. Hutan

    Exercise Training in Post-COVID-19 Patients: The Need for a Multifactorial Protocol for a Multifactorial Pathophysiology, 2022, Cattadori et al

    I don't understand your comment. The paper says that 'fatigue not alleviated by rest' is an exclusionary condition for their exercise protocol. So, they are essentially saying, 'if you have fatigue that doesn't get better with rest, then you are not a candidate for the protocol'. Of course...
  13. Hutan

    Exercise Training in Post-COVID-19 Patients: The Need for a Multifactorial Protocol for a Multifactorial Pathophysiology, 2022, Cattadori et al

    You are probably right. I guess I was thinking of the entire range of people with some lasting effects from Covid-19. Some of these people won't have ME/CFS and may indeed have become deconditioned as a result of being in hospital. Some people might want help to regain their fitness. Or...
  14. Hutan

    Detection of Male Hypogonadism in Patients with Post COVID-19 Condition, 2022, Yamamoto et al

    Yes, @Wonko's option is possible. I wish authors would provide good commentary on how their findings compare to population means. These authors don't tell us what levels of testosterone might be expected in the general population. All of the men in the study who had testosterone levels tested...
  15. Hutan

    Detection of Male Hypogonadism in Patients with Post COVID-19 Condition, 2022, Yamamoto et al

    Yes, we don't know if people with low testosterone are more likely to get post-Covid ME/CFS, or if Covid-19 causes lower testosterone in some men. This study doesn't tell us anything about the testosterone levels prior to Covid-19. The authors suggest two possible mechanisms for Covid-19...
  16. Hutan

    Exercise Training in Post-COVID-19 Patients: The Need for a Multifactorial Protocol for a Multifactorial Pathophysiology, 2022, Cattadori et al

    As I think @rvallee said, it's like watching a train wreck in slow motion. A. Exercise is good and it's the approach we take to rehabilitate other conditions - therefore, long-Covid-19 patients should do exercise. B.We don't have any good experimental data, but, see A. There's a...
  17. Hutan

    Salt

    Some posts have been moved to Frequent urination
  18. Hutan

    Studying severe long COVID to understand post-infectious disorders beyond COVID-19, 2022, Brodin, COVID Human Genetic Effort Consortium et al

    Yes, I was left feeling confused as to who they would in fact be studying. "People with severe organ damage or dysfunction that can be objectively verified" - so, does that mean 2xCPETs? tilt table testing? Or just people with heart or lung damage etc that shows up on a scan, and where the...
  19. Hutan

    Magnesium

    I haven't looked at the evidence for oral magnesium supplementation. The NIH fact sheet that I quoted above says that overt deficiency is rare, but that magnesium inadequacy is fairly common due to some health conditions and some drugs. Maybe a restricted diet and/or diarrhoea might be reasons...
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