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Outcome measures It won't come as any surprise to hear that the primary outcome measure was a self-reported assessment of symptoms. (Placebo effect (enhanced by a bit of psychoeducation), what placebo effect?) And the HADS (anxiety and depression) scale, for the integrated care patients only.

This is an Australian study, mostly Brisbane. What do they mean by functional? Yeah, it's a bit hard to know. I think they are saying 'we don't really know, but we are happy to assume everything is having an effect and it's certainly not just biological They note that a 50-60% 'efficiency...

I just realised, the article is mentioning Long Covid, 'ME and Chronic Fatigue syndrome' and MS as all having a similar impact. This at least is good - so often multiple sclerosis is seen as having much more of an impact than ME/CFS.

The thread on the Nacul study that found lower CK concentrations in severe ME/CFS is here Evidence of Clinical Pathology Abnormalities in People with ME/CFS from an Analytic Cross-Section (2019) Nacul et al. In that thread, doubts were raised that the finding is significant, as lower levels of...

Yes, Maureen Hansen says as much in that recent video. There are plans to continue on with recruitment up to the planned 90/90.

:rofl: Hopefully at least the Welsh National Opera are benefitting from some extra funds. I look forward to seeing the 'formal evaluation results due shortly'. What's the bet it's the results from a survey. Incredible. It's not clear from the excerpt but this community model appears to...

Consumer is a New Zealand not-for-profit consumer advocacy organisation. Some of their articles are free to non-members. I thought of you as I read this one Haveyoutriedyoga. https://www.consumer.org.nz/articles/i-spent-a-week-with-an-air-fryer-are-they-worth-all-the-hype There's also an air...

Thanks @Jaybee00, that's an interesting presentation; some things sound promising. The study that found that particular types of immune cells have drastically different gene expression for pwME and healthy controls is intriguing. (see at 25.30 minutes) I'm a bit surprised that Maureen Hanson...

Some posts about Long Covid Kids have been moved to a new organisations thread: United Kingdom: Long Covid Kids

https://www.longcovidkids.org Interesting to see the 'and related illnesses' there in the Purpose. One of the people involved has ME/CFS and has a child with ME/CFS.

I haven't read this, but it might be interesting for parents with ME/CFS. And possibly good to give to the people supporting parents with ME/CFS. We've got this: stories by disabled parents. 'In this landmark anthology, twenty-five parents who identify as deaf, disabled or chronically ill...

(This was the recent study on EVs. It also had a problem finding something significant after taking into account the large number of variables. They were more focused on markers on the membranes of the EVs.) Comparative Analysis of Extracellular Vesicles in Patients with Severe and Mild MECFS...

So, I'm just getting my head around this. I think this study is using data from a previous study That study was hampered from finding significant results by the fact that the sample size was small and the range of variables being looked at was enormous. So, they seem to have pulled out some...

It's a good study, with lots in there, but, at the same time nothing yet terribly definitive. Given they put the participants through a 2xCPET test, I wonder why they did not tell us how many of the participants (ME/CFS and controls) showed the decline in work at ventilatory threshold over the...

Yes, does anyone have access to the full paper, so we can see if they looked at any relationship between symptoms and mitochondrial membrane potentials? The misinformation in the tweeted replies is pretty sad - lots of speculation presented as fact with an immediate jump to trying to treat 'the...

Welcome to the forum @ana_costa. The fact that an anti-inflammatory seems to help is very interesting. I am pretty sure that ibuprofen helps my ME/CFS symptoms. I agree with @Joel that it's a shame there hasn't been more trials of anti-inflammatories. I googled for symptoms of reactive...

Some posts about Doctors with ME content have been moved to Doctors with ME - discussion thread

Above in the thread I jokingly commented, when we found out the AXA1125 components, that it sounded a lot like chicken. I checked out the specific animo acids: "Animal and plant foods that contain complete proteins or all amino acids include: Red meat. Chicken..." In 100 g of chicken meat...

My two children and I had ME/CFS symptoms essentially immediately after an infection. Whatever state is an ME state, we "flipped into it" straight away. My daughter didn't have such severe symptoms and slowly, over a couple of years, returned to near normal health. I don't think she 'flipped...

If that's what it is, that alone may not be a bad thing - an objective and relatively easy measure of fatigue/fatiguability. From what I have briefly heard and if I have remembered right, dots appear in various places around the field of vision and the eyeball's response to the dot is tracked...