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That seems to be Susannah Pick writing that - and here's the link to our thread on that referenced 2020 paper: Dissociation and interoception in functional neurological disorder, 2020, Pick et al It's exactly as you might imagine, that paper (at least as far as the abstract goes) does not...

Here's the link - it wasn't super easy to find: Expressions of Interest for the Office for Disability Issue's Nominations Database

We've created a thread for the RECOVER Initiative, an NIH programme of Long Covid research. A number of posts that were in other threads have been moved there. USA: The RECOVER Initiative - programme of Long Covid research funding There is also a tag 'Recover Initiative'.

Endless scope for cherry picking, not to mention selection bias in the people who are participants in the study, and the huge potential for researchers to influence subjective reports of 'in the moment' experiences. It's truly bizarre and deeply sad that the Medical Research Council thought...

:) My submission on that draft filled up nearly 50 pages. I've just received word that I've been appointed as a member of this committee, the National Advisory Committee on Health and Disability Ethics. The 'Ethical guidance for a Pandemic' document that is being prepared is one project...

It certainly is bad, but I expect there are quite a few disasters in medicine competing for the title. This has been commented on before, and perhaps it's just the translation, but a 'psychosomatic physician' doesn't sound like a particularly desirable label. Perhaps one just imagines one is...

A reminder that today is the last day for submissions. If you have a little time, perhaps you can pick just a couple of the points above and make a submission. The evidence received by the Inquiry in that Hansard record is awful - lots of multi-disciplinary holistic care and graded activity...

Nice explanation @Willow, thank you. I was actually more bothered by the image of the stamp that appears at that Osteospermum link I posted above, where the Forever was crossed out. 'USA not forever' seemed even more worrying than 'USA forever'. I puzzled about it for a while, checking that...

Thanks @rvallee, a good reminder that the deadline for submissions to this inquiry is coming up.

175. Khanpour Ardestani S, Karkhaneh M, Stein E, et al. Systematic review of mind-body interventions to treat myalgic encephalomyelitis/chronic fatigue syndrome. Medicina. 2021;57(7):652. doi:10.3390/medicina57070652 Thread here: Systematic Review of Mind-Body Interventions to Treat Myalgic...

So, 'positive well-being boosts immune response'. 'There is some evidence that ME/CFS causes the immune system to overreact following infection'. So, 'let's treat that high and ongoing immune response with something that boosts immune response'. :confused: It's disappointing to see Leonard...

I haven't read the paper, but this sounds interesting. There's a paywall. The authors appear credible. They are from Switzerland and the UK. @Midnattsol - one for you I think.

I agree @BrightCandle. New Zealand has a brilliant brain bank service, and potentially a lot of people dying soon who got ME/CFS during the Tapanui flu outbreak of the mid 1980s. I'd love to see funding put to developing an ME/CFS brain bank as part of the NZ brain bank. I think it could be...

I might have to come back to this later - I think we have discussions about this on other threads. But the Norwegian study is doing an awful lot of the heavy lifting here. I'm pretty sure that there are other studies that have not found the 'twin peaks'. For a start, look at that age range...

Posts moved from: Suppose you have €5-10 million for ME/CFS research, what would you spend it on? I haven't collected up all the evidence in one place, but my impression has been of an incidence of more like two thirds female, one third male. Regardless, here are some possible ideas of the...

I'd like to see a really good and large patient registry set up in a small country or state, together with promotion of good coding of ME/CFS (including post-Covid-19 ME/CFS) in the health system. I think we are still at the stage of creating good research infrastructure. A patient registry...

From an email: "AGM Details Thursday 1 December 2022 6pm onwards (Australian Eastern Daylight Time) via Zoom (registration link below) Official Notice for Emerge Australia Inc. Annual General Meeting How do I participate in the virtual AGM? The video conferencing website, Zoom, will be...

Just to put that FND number in perspective - 1950 admissions of people with FND as the primary diagnosis, or even the 6454 admissions of people with FND anywhere on their charts who might just have had an FND as a comorbidity versus So "FNDs" account for around 0.03% of emergency admissions.

It's worth having a look at this chart I think - Figure 2. The descriptions throughout the paper are often not particularly clear, but this is my take: So - the x axis is populations separated into deciles by deprivation, from most deprived on the left to least deprived on the right. The y...

Just looking at this again, aside from the cortisol issue. This is useful: Yet more evidence that pre-existing mental health issues are not risk factors for post-infection fatigue syndromes.