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  1. Midnattsol

    BPS attempts at psychologizing Long Covid

    As Kalliope said, it was about the belief they had covid. Framing it as hypochondriac people who read about covid in the news and got scared, believing they had it.
  2. Midnattsol

    BPS attempts at psychologizing Long Covid

    :banghead::banghead::banghead:
  3. Midnattsol

    Prevalence and predictors of long COVID among non-hospitalised adolescents and young adults: a prospective controlled cohort study, 2022, Wyller et al

    Would be nice if people would take such things into account when listening to certain researchers with an interest in lightning process ;)
  4. Midnattsol

    Long Covid in the media and social media 2023

    While in Norway we have yet another article that things like "it pays too little to go back to work" are perpetuating factors behind long covid, fibromyalgia, chronic pain and similar :banghead:
  5. Midnattsol

    Poll - Have You Ever Believed In Psychosomatic Illness?

    Same for me, just with migraines not asthma. I was not making up that excrutiating pain that made me unable to do things I enjoyed. That my migraines would typically last for the duration of a school day made many adults in my life believe I was malingering to get out of school. Typically enough...
  6. Midnattsol

    IIMEC 2023: Maureen Hanson

    I did not have fever or anything like that that I can remember, so it was either asymptomatic or that the infection was long before I started to notice I would feel terrible when doing stuff. It was just assumed I, especially as a teen, likely had had a recent EBV infection.
  7. Midnattsol

    IIMEC 2023: Maureen Hanson

    This is making me miss cell biology now that I'm working with questionnaires instead of biological data. Though my work now is much more ME friendly than being in the lab :laugh:
  8. Midnattsol

    IIMEC 2023: Maureen Hanson

    I will watch it later :) An example of commenting without having looked at the content :angelic: I look forward to having the asymptomatic infection can cause long term consequences as a recognized fact, at least in the media over here the "experts" cited often only focus on those hospitalised...
  9. Midnattsol

    IIMEC 2023: Maureen Hanson

    So those of us without a clear infectious onset may have had an asymptomatic infection, or have seemingly recovered from an infection but accumulated damage over time causing us to gradually decline in health over months/years..?
  10. Midnattsol

    News from Scandinavia

    I don't know about the rest of Scandinavia, but there are many people with overlapping opinions on the causes of ME and gender dysphoria here, especially in kids. It's all anxiety and depression and should be treated with CBT.
  11. Midnattsol

    Long Covid in the media and social media 2023

    Yet another not bad article from Norway, although the focus this time is there will be a Norwegian paxlovid trial. No mention of ME, and I think if the head of the GP association interviewed gave some thought to this she'd realise there IS research on the patients that keep going to see their...
  12. Midnattsol

    Trial Report REFUEL-MS - CBT/GET Digital Intervention MS-Fatigue

    Since they seem assured it is going to work and be generalisable to other conditions, would it matter what condition they got funding for originally? :grumpy: And more than likely something like this is already in place.
  13. Midnattsol

    Preprint Determinants of the Onset and Prognosis of the Post-COVID-19 Condition: A 2-Year Prospective Cohort Study, 2023, Mateu et al.

    At least we are starting to see this type of studies now, I get so sad when I think about all the research that could have been done from the start of this pandemic, giving us better knowledge, and instead... gah. More cbt anyone? It could also be due to different symptoms? For my line of work...
  14. Midnattsol

    Trial Report REFUEL-MS - CBT/GET Digital Intervention MS-Fatigue

    With this model, easy to adapt should you need to apply for funding for another disease instead :whistle:
  15. Midnattsol

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I'm pretty sure both Wyller and Flottorp also have said it will do no harm to exercise and that there is nothing wrong with patients.
  16. Midnattsol

    Trial Report REFUEL-MS - CBT/GET Digital Intervention MS-Fatigue

    Due to the language used here, such as "logic model" and "iterative" I assume the intervention is based on this type of framework that we have a thread on here: A new framework for developing and evaluating complex interventions: update of Medical Research Council guidance, 2021, Skivington et...
  17. Midnattsol

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    There was a recent case in Norway with journalists that did some investigatory journalism on eating disorders in youth sports. they did not apply for ethical approval as it was "journalism" not "science". This journalism included questionnaires and medical personnel. This was reported, and they...
  18. Midnattsol

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    Well, a journalist is allowed to research and treat pwME in Norway so there is a precedent :banghead:
  19. Midnattsol

    Long Covid in the media and social media 2023

    Two actually decent articles on long covid, except for omitting the similarities to ME, from forskning.no with a focus on how debilitating the illness is (though the framing of "fatigue" as the most bothersome symptom when it will be read by most as people are just a bit more tired is...
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