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  1. Midnattsol

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I checked my step count, and it has decreased by ~1000/day since I started working, from averaging ~4500 to ~3500. This is with me being in the office typically two-three days a week and working from home the rest. I've had to reduce other activities to make it work. Though another change is...
  2. Midnattsol

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I hope NICE And an absence of the fact that Cochrane put a label on the CBT review stating it was out of date? Or did I miss it?
  3. Midnattsol

    Physiotherapists may stigmatise or feel unprepared to treat people with low back pain and psychosocial factors that influence recovery, 2015, Synnott

    Came across this while looking for patient experiences of how health care workers talk about behavior modifications. I found it interesting since at least in my country low back pain is often used as an example of a symptom where the biopsychosocial model is beneficial.
  4. Midnattsol

    Physiotherapists may stigmatise or feel unprepared to treat people with low back pain and psychosocial factors that influence recovery, 2015, Synnott

    Full title: Physiotherapists may stigmatise or feel unprepared to treat people with low back pain and psychosocial factors that influence recovery: a systematic review Abstract: Question: What are physiotherapists’ perceptions about identifying and managing the cognitive, psychological and...
  5. Midnattsol

    Do diagnostic criteria for ME matter to patient experience with services and interventions?, 2023, Kielland et al

    There is nothing more to be read, I think they really only meant to have a link to the article in that space. I dislike how some are arguing that CFS is different from ME, and maybe those with CFS may benefit. Some even go so far as to say that those with burnout and similar WILL benefit from...
  6. Midnattsol

    Long Covid in the media and social media 2023

    More about prolonged sick leave from covid in Norway, this time focusing on gut symptoms: Fleire melder om mageproblem etter koronasjukdom Several people report stomach problems after corona disease Again data from our Welfare and Disability Institution (NAV), where they've seen people with...
  7. Midnattsol

    Does it make sense to consult a nutritionist without a specific question?

    I think they're interesting, but at least where I am it is not something the dietician orders, we help with adjusting the diet to work around a metabolic problem while still getting the nutrients required. It's been a while since I was reading about these tests and I am not sure how they would...
  8. Midnattsol

    The nanoneedle salt stress test – too good a clue to leave abandoned on the lab bench?

    In some metabolomics data I was working with, we had a handful of compounds with near perfect separation at baseline between the two comparison groups where participants had been put at random. Out of 1000+ compounds, but still. Since the difference was only in these compounds, that was from the...
  9. Midnattsol

    Does it make sense to consult a nutritionist without a specific question?

    The way I'm thinking about my own diet and metabolic health, is that the high protein diet is likely providing me with some nutrients that help keep some functions running. Possibly a metabolic backup system of sorts, like how the body prefer to use simple glucose as energy, but can also break...
  10. Midnattsol

    Does it make sense to consult a nutritionist without a specific question?

    All of those questions do pop up from time to time and I'd think most nutritionist would have come across them. So you might be able to get some help. That said, I have periodic wolf hunger myself, and had I been my own patient as a dietician I would likely not have found anything "wrong" with...
  11. Midnattsol

    End Malnutrition in ME

    Is it possible to have the "End malnutrition" under "Campaigning" on the 25% M.E. group website? Or somewhere else on the site? It would make it clearer that there is an association with the account.
  12. Midnattsol

    Issues to consider in dietary intervention studies in ME/CFS

    This is something that gets too little attention. There are so many special diets that have elimination of food groups, but the elimination part is just a by-product of whatever other thing one wants to do with the diet and gets overlooked when explaining findings. That said, meals and diets...
  13. Midnattsol

    Issues to consider in dietary intervention studies in ME/CFS

    Patients that are housebound (even only periodically), and/or have cognitive or muscular impairments that made it hard to shop/prepare foods/eat, and/or have nausea or other symptoms that can reduce food intake are generally considered "at risk of malnutrition" and should be screened based on...
  14. Midnattsol

    A new framework for developing and evaluating complex interventions: update of Medical Research Council guidance, 2021, Skivington et al

    This framework was part of a course I took in how to design complex interventions. I really enjoyed the focus on stakeholder (often patients) perspectives and having the researcher write down the assumptions and predicted effects clearly building a so-called program theory and logic model that...
  15. Midnattsol

    A new framework for developing and evaluating complex interventions: update of Medical Research Council guidance, 2021, Skivington et al

    Summary points Complex intervention research can take an efficacy, effectiveness, theory based, and/or systems perspective, the choice of which is based on what is known already and what further evidence would add most to knowledge Complex intervention research goes beyond asking whether an...
  16. Midnattsol

    Issues to consider in dietary intervention studies in ME/CFS

    Great points @Ravn. I just want to expand a bit on the nutrition intervention and pacing part :) I think certain types of nutrition interventions can, if not be blinded at least be made obscure, even if they are whole diets. As long as there is a control group that gets a similar diet. Say if I...
  17. Midnattsol

    BPS attempts at psychologizing Long Covid

    No. But that they write "If you are unsecure, talk to us" it seems to me it is likely the page is supposed to be for participants in something. Also that they use their first names and not their professional titles at the bottom of the first page.
  18. Midnattsol

    BPS attempts at psychologizing Long Covid

    Beat me to it @Kalliope I'm somewhat glad they put the banality on full display, such as this gem:
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