Search results

TV2 has a good report today of Erika 16 with long covid, no minimizers from NIPH this time. Though the researchers who talk about the consequences of long covid doesn't say anything about how, you know, maybe we should do something to prevent kids from getting ill? I can't get google translate...

I would think "scam". I havent had the energy to read it, but based on how people in Norway think pwME are trying to scam others for the oh-so-fabulous secondary gains... I don't think it's been mentioned on here yet, but Nina Steinkopf wrote an opinion piece that was published on NTNU's own...

She was admitted to Røysumtunet centre for severe ME in autumn last year (is still is admitted?) which may explain some of it. Story in local newspaper from february about her stay up to this point where it says it was extended two months: The enormous support gives both strength and finances...

There's also that small study on increased translocation of LPS in pwME following exertion.

There's a story on social media of a potential patient with severe ME that has been placed in a psychiatric institution in Norway :( I say potential as the person was on their way to get diagnosis but hadn't gotten it yet if I understood the posts. First shared by Eline Leer-Salvesen who wrote...

Posts on the IQWIG report have been moved to the thread "Germany: IQWIG Report to government on ME/CFS - report out now May 2023"

Posts have been moved here from the "News from Germany" thread.

A nice article on cognitive impairment following covid Trodde hun var frisk etter korona. Så sviktet hukommelsen totalt. Thought she was healthy after corona. Then the memory failed completely. I especially liked that the neurologist was clear this was not due to stress. I hope more...

Should have said health record researchERS ;) The problems are known, but still it just keeps on being done... I do love forskning.no's headline for the study though. "Norwegian study: Long covid actually more common in covid infected". It's the "actually" that does it for me :rofl:

Cool. Some research at University of Oslo have also found impaired cholesterol metabolism in hospital admitted patients. Focus primarily on LDL. Not sure if there is another publication, but here is a "letter to the editor" about their findings: Low-density lipoprotein particles carrying...

My faith in health record research has plumetted.

Agree. It makes me so frustrated and sad. There has been more students who have taken zero ECTSs/credits as well, but there were also record high numbers that applied to go to universities at the start of the pandemic so I'm not sure if it is due to illness or not. Sick leave in students is not...

The table on absenteeismen is sobering if that shows that about 1/4 of participants is absent from school/work/extracuricular activities eight months post delta infection. And from the text itself nine of those absent had asymptomatic infection.

I was thinking about adding a caveat about the numbers :rofl:

Just a note for those of you not in Norway, the second opinion piece in the above post is written by a known pro low-carb doctor team that run their own clinic.

I missed this, but a "young voices" opinion from a young doctor in Norway (who is a phd student at the same hospital as Wyller) concluded that with MUPS diagnosis the treatment that is left (since there is nothing wrong) is to "reinterpret" the symptoms: Non-specific symptoms – and uncertain...

Sigh..

Thanks for adding Kalliope! This image from the article at FaFo's own page of what experience pwME have with various treatments they have to do is quite damning. Translated color scale: "Very negative", "Negative", "Neutral", "Positive" "Very positive" Translated y-axis (from the top)...

I'm happy to see this published, the results have been mentioned in various talks by the researchers already. I don't have the energy to read it now though.

Full title: Do diagnostic criteria for ME matter to patient experience with services and interventions? Key results from an online RDS survey targeting fatigue patients in Norway Abstract: Public health and welfare systems request documentation on approaches to diagnose, treat, and manage...