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Maybe another thing, as you say is the support groups. But surely that’s only a fraction of the real cases. What about the people who aren’t in support groups & just do it because that’s the national health advice. On the other hand... the outcry due to the prominent patients (like Garner...

@rvallee I’m sorry but I don’t share your enthusiasm.. I would say I’m an intelligent person. when I embarked on the GET course; I had already fallen ill from mild to moderate to severe in a space of a few months from pushing myself. That was my onset. And after that, I seemed to be slowly...

@rvallee Why do you think people won’t be happy with it? Do they already know about the exercise issue & harms? At the beginning before I knew anything about ME, I really believed in the exercise & psychological help 100% and was happy that there was “treatment” it’s only after I deteriorated...

Who is that?

Oh wonderful! What about your neck? there doesn’t seem to be an area to put your neck.. or was it not like that when you sat on it? Like did you push the headrest right up against the backrest, and was there cushioning for the neck? And how were the seats - were they very soft against your...

Wow bardcore is lovely. I don’t remember where I mentioned it but I really like watching videos of medieval and “historic” fashion, and this music goes so well with that. Very relaxing and melodious. Also, veggie breakfast is the best. We call it “big breakfast” in our house. Except we don’t...

Yes, and that’s why I really appreciate this forum. I think there’s something special here that I haven’t found on any other forum or on facebook (if there’s something similar on fb let me know..). These things - what recovery means, what control groups are and why they’re so important...

So for all the talk of R rate, the govt don’t actually care now that the R rate probably could have gone above 1?

I’m not convinced it’s the problem either. I think dysautonomia is just one of the symptoms, and possibly not even the most disabling one that stops people from being able to function as before. Eg people with “just” PoTS and sweating and bladder issues etc, look very very different to those...

So my mum finally picked up a phone call. It was a private number, it wasn’t the Covid number (that actually comes up as “Covid” or something on the screen), but this was from the Council. She asked to speak to me but I just confirmed my name and said I’m too unwell to talk. I passed the phone...

Yes.. I’ve been looking around on eBay.. are there any other sites? The issue I’m seeing so far is that even though they say tilt and recline for some of the chairs, the pictures only show a partial tilt and recline, whereas I would need it to go completely flat. So I’m trying to figure out...

I was just thinking, at the beginning of the pandemic - even though China didn’t admit to the extent of coronavirus until late in January - if, at that point, all countries had locked down their borders and enforced 14 or even 28 day quarantine for all overseas travellers from all countries, no...

@Kitty thanks. Do you know how heavy this would make the chair? I have an electric wheelchair already with tilt in space & recline. I used to use electric more but since being more ill I find it difficult to control my wheelchair. So a manual chair (With a comfortable backrest, headrest that...

I just really wish countries & humans in general would understand that the human animal ecosystem is so complex, we are a part of nature after all.. and it’s better to just leave animals to be and not pump full of antibiotics/ eat/ kill/ use/ encroach on the natural habitat of animals in all the...

What do you mean? Btw I stopped watching tv for these matters & only read articles. Does he no longer come out for conferences & appearances? He does come out for PMQs though from what I read.

The problem is that in the article, it reads as if all the symptoms are assumed to be either PTSD or psychological in nature, or physical symptoms that can & should be rehabilitated. It even says in the article “lying in bed all day makes it worse”. But we know from viral infections in general...

Well yes exactly. “The case for new measures and messaging to reassure this half of the country that their safety will not be compromised once the all-clear is sounded therefore seems logical on the surface. But look deeper, and the case seems a lot less wise.” Erm what? Our safety is...

That’s amazing!! :blush:

Are these all 16,532 individual people? Just wondering because I signed up to both websites so did you account for the double sign ups? :)

@Andy, if you join the zoom meeting, do you have to introduce yourself or talk or have your video on? Can I join and then just listen in without speaking / participating / turning my video on?