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More like a nightmare. The idea of mixing together two mutually exclusive concepts, one literally defined by the absence of the other, is completely insane. It seems that a good guide for competent and humane health care is basically to reject everything Michael Sharpe thinks is a good idea...

That's the danger with putting all your eggs in one basket. Once the basket is on fire, no egg is safe.

Literally how faith healers work. That should give any reasonable person pause.

So this invalidates both the B&B assumption, which never had an inkling of evidence and was always just assumed to be true, and the deconditioning hypothesis, with findings that most ME patients are highly sedentary but not at all to the point of being deconditioned. There are, in fact...

Yeah there was a talk by Chalder I saw a few weeks ago about MUS in general and it has the B&B concept. It's a generic thing they imagine is present in all MUS, not specific to ME.

This isn't about evidence. It's politics. Too much has been invested in the psychosocial model. Over the years there have been thousands of consistent complaints, forcing its promoters to reaffirm constantly that they stand behind it, based on gut feeling and spurious logic and despite all...

I expected nothing and I'm still disappointed. Disappointed at the reckless indifference to the human lives they are hurting. Disappointed that medicine can be so massively incompetent and cruel even in the face of overwhelming evidence. Disappointed at the sheer inhumanity of the process, one...

Textbook example of someone who should never, ever, have been allowed to work in anything remotely related to health care. Respectfully: GFY.

There definitely is remission from ME. I've had at least 3 significant ones. During one of those I was able to do martial arts regularly. I had had mostly autonomic and cognitive problems before then, not much significant "fatigue", however much that word sometimes does a lot of heavy lifting...

I can easily replicate that. In anyone. Including the fools who think they're making a serious point here. 100% guaranteed. Take an annoying noise, something like a smoke detector. Make it intermittent, say once every few seconds. Even worse if it's a bit unpredictable, just make sure it's...

There are serious problems with the kind of scale that are used, with "very much improved" just not being a meaningful measure. When you are stuck on a 300 calories a day diet, a 50% increase is definitely very much improvement. But on absolute terms it's meaningless as it's still well below...

To be fair, it does take years to acquire object permanence. It's a tough requirement, perhaps, but I really would like research into my disease to take into account object permanence. I guess it's just too darn much to ask of some people, but I will keep on insisting for that requirement...

It's slightly beneficial for healthy people, to a point, and mildly helpful for those with mild health problems. It's otherwise mostly useless. Building infrastructure for cheap activities, tax credits for things like gym memberships and social clubs and the like are much better ways of...

And like many I had never even heard of ME (or CFS) until at least 5 years into being ill. Literally never had heard the name, let alone what it is. Yet so many insist that this an "Internet disease", nevermind that it's been researched since before the Internet even existed. And none of their...

Oh, they do: make it all up. Your study failed to show benefits? Just say it did and fudge your numbers to fit your conclusions. Attack anyone who says otherwise. Call those who claim to be harmed by it crazy. Insist that you know best, even if the implication is an ability to read minds. It's...

Extraordinary claims with exactly zero evidence. Literally just a gut feeling. Centuries of science have shown that this is exactly the wrong way to go. It takes a supreme level of incompetence to keep going this way after so many hard lessons. But I guess it's OK since none of them will...

Literally could not have better described the exact opposite of who I am. I don't know what thought process convinces this guy to think he can read minds but this is less than ideal when dealing with sick and vulnerable people. What arrogance. Someone needs to teach these idiots about...

We don't have the full solution to the puzzle. It is hard to predict from the pieces what the solution will be. But to continue to dispute that there is a puzzle at all is completely unreasonable at this point. The alternative psychosocial explanation is extremely weak and has by now shown...

How is that crap any different from brainwashing? The evidence base for this doesn't even come close to rise to the level of being legitimate. Some serious accountability is needed, medicine is completely losing the plot over this.

Same here. I think I became someone better. Maybe, can't really compare with the alternative but adversity does reveal who you are. But who isn't the whole thing. Being self-actualized in a medieval oubliette isn't quite the same thing as being half-way there while on a trek during a vacation...