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  1. rvallee

    CNS findings in chronic fatigue syndrome and a neuropathological case report (2017) Ferrero et al.

    Abundant? Well... that's interesting. Although likely to be two distinct and unrelated diagnoses, so not specifically relevant to ME. Also not very promising if it plays a role seeing how decades of attempts have failed in Alzheimer's disease.
  2. rvallee

    Gravity-induced exercise intervention in an individual with CFS/ME and POTS, 2019, Ballantine, Srassheim, Newton

    Those aspirations mostly only apply to healthy people so they remain healthy. They're not bad, they just don't apply to the sick. Which is a recurrent theme in health care. Already sick? Oh, well, good luck with that I hope you get the help you need (but, no, we're not going to do that so stop...
  3. rvallee

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Of all places, this publication would be a pretty bad medium to just do the usual and dismiss all contradictory evidence and patient experience. Not holding my breath, but this is one of those places where just taking Sharpe at his word will be really hard to justify in hindsight. Most of...
  4. rvallee

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    If they live long enough, decades after we are all cured and no one contracts this disease anymore, they will still be trying to cherry-pick some psych correlation and promoting their belief system. It's a cult, reality simply does not factor in.
  5. rvallee

    News from Scandinavia

    Sometimes I wonder if that's one of the reasons we are suppressed, that this may be one of the consequences of vaccination and the anticipated disaster it would cause. For the record I would still be 100% in favor of mass vaccination, even if it were the main culprit. It's still entirely worth...
  6. rvallee

    Collaboration with SolveCFS

    Like Mark Watney said in The Martian: [we're] going to have to science the shit out of this. It's the only way out of this mess, except we have no ground control or secret Chinese program sending a rocket to get us out. It's all dust and potatoes and a lethal environment. Collaborating on the...
  7. rvallee

    Gravity-induced exercise intervention in an individual with CFS/ME and POTS, 2019, Ballantine, Srassheim, Newton

    Have they considered not doing garbage research? That's usually why the criticism is so harsh, and deservedly so. Garbage research needs to be called out. This isn't kindergarten. This is real and it impacts people's lives. Quite frankly I hold on to many [expletives deleted] most of the time...
  8. rvallee

    News from Aotearoa/New Zealand and the Pacific Islands

    This thing has completely veered off deep into woo territory. What's next, chakras and karma? Tarot diagnosing? Wait, no we're already there. After decades of warning against alternative medicine, the woo behind much of alternative medicine is now turned into a central component of modern...
  9. rvallee

    David Tuller: Trial By Error: My Letter about MUS to the British Journal of General Practice

    Oh with a bad system and no sense of urgency, yes. But you need a terrible system for that and an even worse process. Like, pathetically bad. The kind that is justifiable for a small company. BMJ is not a small company, it is very mature and has all the resources it needs to accomplish its core...
  10. rvallee

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Guy who attacks sick people raising the alarm about his mistakes, amounting to tens of thousands of individual complaints, gaslights them for a living and built his career on the wanton destruction of millions of lives says "put the patients first". Right. Irony. Dead. What a ghoul.
  11. rvallee

    UK House of Lords/ House of Commons - relevant people and questions

    That's a completely irrelevant answer. IAPT has absolutely nothing to do with medical care for chronic medical conditions, which was the question. Like answering a question about wildfires and talking about a forest-raking program. But it does reveal the modest proposal at the center of IAPT...
  12. rvallee

    Gravity-induced exercise intervention in an individual with CFS/ME and POTS, 2019, Ballantine, Srassheim, Newton

    Groundbreaking stuff. Why they felt this needed an illustration is... puzzling. Seems almost like a joke that they would call this a "novel" intervention. The chair, such a marvel of technology and ingenuity.
  13. rvallee

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    Sure, but the professional course correction comes first. Advising the public is useless if the official advice remains that it's not medical professionals' concern. A few months ago when the CDC changed its information it was explicitly mentioned that it was just for informational purposes...
  14. rvallee

    David Tuller: Trial By Error: My Letter about MUS to the British Journal of General Practice

    As a former web professional, this delay thinh is mostly bunk. Yes, it can take time to push through updates, but that is a choice when the consequences are trivial. It can be expedited easily and they simply choose not to. 99% of the delays are the involvement of human behavior, basically...
  15. rvallee

    Jon Stewart on proper health care to 9/11-responders

    Jon Stewart is a treasure. He cares and feels the pain of those he advocates for, it is genuine and heartfelt. I love this man so much for everything he represents. I doubt he was singularly responsible for the denial of 9/11-caused illness, but this brings the tally of Simon Wessely's career...
  16. rvallee

    Gravity-induced exercise intervention in an individual with CFS/ME and POTS, 2019, Ballantine, Srassheim, Newton

    Not with that attitude. At least they didn't try antimatter therapy. That would have been explosive.
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