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  1. rvallee

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    But totally not a cult. It's just a coincidence that this is how cults recruit. Totally legit. It's going to be such an expensive anchor on their neck in the next few years. Giving institutional credibility to pseudoscience is something that needs severe punishment, many medical licenses will...
  2. rvallee

    Trial By Error: Who Has the School Study Documents?

    I'd like them to describe the service being delivered. Surely service evaluation has to actually name the service being delivered. What is that service? And how does it relate to the actual evaluation? Of course it doesn't help that it was published under research. Sometimes the devil is in...
  3. rvallee

    MEpedia and Internet Archive

    I see that robots.txt is not configured. It's a special file that tells search engines about updates and which pages are most important. Without that search engines do a basic crawl and set their own rules based on affluence (more visited sites get more interest, but this only works at much...
  4. rvallee

    Psychology & Health: Perfectionism and beliefs about emotions in adolescents with chronic fatigue syndrome and their parents (2019) Chalder et al.

    It's laughable to claim p-values from a subjective questionnaire. It's like giving triple-floating point precision on a guesstimate. Forced precision like this is a big tell that angels dancing on a hairpin are being discussed. This whole disease personality stuff is no more scientific than...
  5. rvallee

    Personality and fatal diseases: Revisiting a scientific scandal, 2019, Pelosi

    Of course... :banghead: You can barely look anywhere in this dumpster fire without finding conflicts of interest and extensions to the circle jerk. It's really amazing. Really bad idea to rely on a system of uncritical deference to eminence and old boys' network.
  6. rvallee

    Mitochondrial complex activity in permeabilised cells of chronic fatigue syndrome patients (2019) Tomas, Brown, Newton, Elson

    Pathogens have definitely not been ruled out. We don't know much about the vast majority of pathogens out there and some pathogens previously thought to be harmless are being found to have possible disease-causing mechanisms in some people. A study published last year in Nature suspects EBV (or...
  7. rvallee

    Psychology & Health: Perfectionism and beliefs about emotions in adolescents with chronic fatigue syndrome and their parents (2019) Chalder et al.

    They're talking about beliefs as if it's something that can be measured in any standardized way. Who gives approval for nonsense like this? You can't measure "unhelpful beliefs" any more than you can measure chakra energy, vitality or whatever marketing terms used by alternative medicine. This...
  8. rvallee

    Psychology & Health: Perfectionism and beliefs about emotions in adolescents with chronic fatigue syndrome and their parents (2019) Chalder et al.

    Let's see: it is possible, it may be, may have, could be. This is more speculative than astrology and of equal scientific value. I have second-degree cringe from the incompetence on display. Campfire drunks regularly manage more serious and meaningful discussion than this. It's completely...
  9. rvallee

    Psychology & Health: Perfectionism and beliefs about emotions in adolescents with chronic fatigue syndrome and their parents (2019) Chalder et al.

    WTF is emotion regulation style? How does anyone determine what style of emotion regulation one has and how does one measure that style in a scientific way that can have application to medicine? How does one decide what perfectionism is? This is the same fundamental issue as with fatigue: what...
  10. rvallee

    Psychology & Health: Perfectionism and beliefs about emotions in adolescents with chronic fatigue syndrome and their parents (2019) Chalder et al.

    When encouraged to just make stuff up for years, people continue making stuff up until they're stopped. Hell, they're getting participation trophies for doing meaningless research so full throttle on the psychobabble. This is a parody of science.
  11. rvallee

    Open Chronic fatigue syndrome participants wanted for aquatic exercise trial Published 22 February 2019

    Is chronic self-slapping-to-the-face key to not saying stupid things? It may, it just may. Unless the real key is self-ass-kicking. Or it may be wearing a donkey hair toupee. It may be a lunar rock diet. Who knows? It takes years of advanced training to be a research scientist. And this is what...
  12. rvallee

    Literature search on PEM from The Norwegian Institute of Public Health by Lillebeth Larun et al

    Someone who already "knows" the conclusion and wants to promote it. As is tradition.
  13. rvallee

    Clare Gerada: influence on UK medical practice and ME/CFS management

    Oh boy. That's really bad. Looks like the response to mounting evidence of disaster is to double down on the worst aspects. I hope serious change happens soon before this gets out of hand.
  14. rvallee

    Article in Aeon-How the body and mind talk to one another to understand the world--Sarah Garfinkel

    I personally favor a theory of mind that makes prediction the core of how intelligence works, that predicting the future is the essential characteristic of intelligence. The brain constantly predicts things and adjusts its future predictions based on differences from those predictions. That's...
  15. rvallee

    MUS services in UK and other MUS related issues

    Clearly, if you are in prison, you are guilty of something. If you were not guilty, you would not have been imprisoned. So just confess and we can move on. If you don't confess, we will add charges for lack of remorse. If you show remorse, we may be more lenient, but you will remain imprisoned...
  16. rvallee

    MUS services in UK and other MUS related issues

    But going about it exactly the wrong way: bringing speculative personal beliefs of mental health into biology instead of bringing biology to explain the mental effects. And sorry but in the earlier part of that quote, the use of "knowledge" is completely wrong. Speculation and wild ideologies...
  17. rvallee

    MUS services in UK and other MUS related issues

    Bit of a tangent but it seems fitting that a toxic work environment would deliver toxic services. https://www.hsj.co.uk/quality-and-performance/revealed-crisis-at-top-ccg-amid-claims-of-bullying-and-toxic-culture/7024480.article But clearly it's the vulnerable people begging for their lives...
  18. rvallee

    MUS services in UK and other MUS related issues

    Supply-side medicine: driven by the wants and beliefs of those managing and dispensing the services, rather than the needs of those who should benefit from them. There's a classic story in political science about the Soviet politburo, struggling through economic stagnation in the years before...
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