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  1. rvallee

    Who is Simon Wessely?

    There is hardly a more reliable feature of a broken system than rewarding failure and mediocrity. And when a system of medicine rewards one of his own, again, after all the harm he has done to millions, it reveals how thoroughly it has lost its way. "Do no harm" is now "or do, whatever, we...
  2. rvallee

    The Hospital Anxiety and Depression Scale (HADS) - a discussion

    No I think you're seeing it clearly. The problem is misuse. The questionnaires don't say anything by themselves, it's the interpretation that can lead to problems and it's already such a clear problem that their continued use is problematic. Unfortunately they are so open to interpretation that...
  3. rvallee

    The Hospital Anxiety and Depression Scale (HADS) - a discussion

    The broader use of questionnaires in medicine is a growing problem, it's turning the whole practice into pseudoscience. It simply has no place other than as hint, it should never be considered a reliable and formal measure of anything. Questionnaires can be used to show anything a dishonest (or...
  4. rvallee

    MUS services in UK and other MUS related issues

    This word salad is the incoherent ramblings of a very confused mind. WTH is wrong that this mad-hatter is taken seriously? He should be a patient of his own nonsense, not in a position of authority to promote weird snake oil. Shame on anyone who takes this guy seriously. You should know better.
  5. rvallee

    The "chronic brucellosis" papers.

    And 5 decades later, still the same. Every psychosocial research paper, even those making broad conclusions and treatment recommendations, is entirely built on may bes and could bes. Zero progress on substance, not a single reliable objective finding, and still it has taken over as a dominant...
  6. rvallee

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Indeed, just giving a standard regular stock of sausage rolls to a group of ME patients would actually make them rate their fatigue as "improved" on a questionnaire. No joke. It absolutely would. I wish I were exaggerating but I'm not. This is the standard we are working with. It would be...
  7. rvallee

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    And ironically enough, I think that's Sharpe's current "research". So it looks like his fictitious model is failing again and he's just going about his usual way: just pretend it works and insult everyone who disagrees with you. It worked so far and he's painted as a victim for failing so why...
  8. rvallee

    The Norwegian ME Association's report on severe ME

    This directly contradicts the narrative that ME patients are heavy utilizers of health care resources. Not that it ever had any evidence but this has been my experience as well. There is often an initial heavy use of resources to make the diagnosis, which is entirely the fault of health care...
  9. rvallee

    The Norwegian ME Association's report on severe ME

    This looks pretty fair and accurate. I guess we should expect some furious outrage from the ideological squad in the next few days? An accurate assessment such as this basically makes a solid case that they are promoting a human rights disaster, which is entirely accurate. This clearly shows...
  10. rvallee

    OMF: Stanford Genome Technology Center Applies to NIH

    NIH demanded hypothesis-testing from senior researchers working at world-class facilities. They don't always demand that, they could have set aside exploratory research budgets, but they demanded it here. Here it is. Let's say whether the goalposts will move once more.
  11. rvallee

    Behavioural medicine

    Seems pretty safe to say that what they mean by active patients is to follow instructions dutifully. It's still very much a unidirectional relationship in which one speaks and the other nods, the only change here is that active patient keeps on nodding after they left. Sometimes this is...
  12. rvallee

    Studentship in process: A Mixed Method Exploration of the Association between Autism and Central Sensitivity Syndromes, Sarah Grant, KCL

    So, N=2 so far but nonetheless aligns with how this usually goes but it seems that the "link" between autism and CFS alleged in the abstract is nothing more than confusing ME/CFS/WHATEVER with chronic fatigue, the symptom. Which was always the biggest problem with taking one of the most common...
  13. rvallee

    Behavioural medicine

    Bit funny that the solution to "medicine is too top-down and patronizing and this is causing problems" is to invent psychologically-based alternative medicine, rather than changing medicine away from the condescending dictatorial method that is failing millions. There is absolutely nothing...
  14. rvallee

    Energy Conservation Management for People With Multiple Sclerosis–Related Fatigue: Who Benefits? (Blikman et al, 2019)

    And they so fearful of saying their true intent that they don't mind pretending to be stupid, knowing people in the know hear the dog whistle.
  15. rvallee

    Energy Conservation Management for People With Multiple Sclerosis–Related Fatigue: Who Benefits? (Blikman et al, 2019)

    But the questionnaires tell them what they want to hear so of course they're not biased. smirks in Dunning-Kruger
  16. rvallee

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    It definitely will, with time. It would just be nice if we could actually consent to what happens in the interval. That's the worst of it: our consent isn't simply denied, it's not even considered, willfully and systematically contradicted. Agency has been arbitrarily denied from us, by mere...
  17. rvallee

    Energy Conservation Management for People With Multiple Sclerosis–Related Fatigue: Who Benefits? (Blikman et al, 2019)

    I certainly can believe that privileged nobles can receive some form of secondary health benefits. To a point, but that takes great wealth and privilege. Without those you have destitution, suffering and death. So no surprise that it would originate from psychotherapists for the rich and...
  18. rvallee

    Energy Conservation Management for People With Multiple Sclerosis–Related Fatigue: Who Benefits? (Blikman et al, 2019)

    I really want the authors to explain, in painful detail, what they mean by disease benefits. Or anyone who promotes this idea that pervades the psychosocial ideology. Those mythical and oh-so-wonderful secondary benefits of illness. Because the few times I have seen them explained, they amount...
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