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They even claimed there was a special police unit to monitor the dangerous ME militants. :rofl: One person I talked to was even convinced there had been a car bomb. I don't know how he got that idea.

https://sci-hub.se/https://doi.org/10.1016/j.clinthera.2019.02.014

What's also popular now is claiming that psychotherapy can reverse neuroinflammation, or allow patients to change harmful physiological processes at will (that is what Phil Parker claims). It's just more rebranding. Nobody has actually done the scientific work that would demonstrate this.

It was an attempt to give some sort of theoretical basis to what the Freudian psychotherapists and psychiatrists had been doing. Fast forward until today and we have the CBT/GET theorists that are caught in a situation where it is apparent that there is no scientific basis to what they've been...

My reading of Engel is less positive. He is very vague. The purpose of this article seems to have been exactly that of protecting dysfunctional psychogenic illness models. That doesn't mean that he didn't say a few sensible things, but that he said them so that the non sensible practices could...

@Woolie brilliant. ME/CFS patients also do not reject the importance of mental health, we just have very different ideas about what it means, and we do reject the specific model put forward by CBT/GET proponents. Patients continously point out how harmful and distressing it is to be sick and...

The persistence of these symptoms could then indicate either persistence of depression or persistence of CFS.

From what little I can see, the conference seems to be a success. After a weak opening the talks have become more and more interesting. Let's hope it will have a lasting impact and bring much more attention to ME/CFS.

Data related to safety could change the flavour.

I'm having problems with the stream and appreciate screenshots being posted.

Interesting.

That's because there are none.

Something I remembered now is that in the early phase of the illness, there were a lot of fluctuations (timeframe: days). Over time (a couple of years) this pattern gradually changed so that the bad periods lengthened and the good periods shortened (timeframe months) and eventually it became...

A remission would be being symptom free. I've not had remissions, but rarely periods where I'm feeling much better. It seems random.

This study is very bad news for psychogenic illness models.

Maybe Sharpe thinks LP adds evidence in support of the cognitive-behavioural model of CFS.

It is terrifying not just because there is no scientific basis to what they're doing but (excuse me if I cannot express this well) patients and carers are viewed as lacking insight by default. The patients and carers are people who are in a position to give feedback on how this is really...

As would be the case when the therapists have got it totally wrong and are pushing harmful treatment and ideas on the patient.

No money to be made from resolving wider social issues affecting patients. Money to be made by making up treatments for problems patients don't have.

What is amazing is that they assert that various illnesses are psychogenic but cannot provide anything resembling evidence. It's a commonly accepted belief that is never questioned. By now there is a complex belief system built on top of it. Unsurprisingly they struggle to produce convincing...