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A wastebasket it may be but we still need studies to better understand what is being misdiagnosed and what's wrong with those where no known disease can be identified.

Is there a word for repeatedly suggesting that the correlation may be indicative of a cause, acting like it does, but without comitting to clearly saying so? Erm weasel words maybe?

The qualitative experience of PEM has nothing to do with the usual muscle soreness and elevated mood after exercise. Nobody would confuse muscle soreness with an illness. I can get muscle soreness without PEM and PEM without muscle soreness. They are distinct processes. At least for me.

It's also unsurprising that CFS patients score worse on these questionnaires than asthma patients. They are much sicker.

That there is a correlation between thinking the illness is bad and lower functioning some time later is entirely consistent with the illness actually being bad. Chalder of course interprets this as these thoughts being a self fulfilling prophecy that causes worsening of the illness.

I have marked fluctuations within a timeframe as short as a few hours. Inconsistency is a nonsense criterion. In reality they do not have any rule that can be used to distingush feigned from real illness.

This will be a centre that will research fatigue in various illnesses, find biomarkers, carry out treatment studies, and produce educational material. The document names cancer, ME, and neurological disease.

It's a translation error. It says "aim of the new centre is ..." in the original.

Thanks, this is nice to hear. What metabolism angles is she referring to? I'm not sure how to best describe what has been found. That cells are in a hypometabolic state that doesn't appear to be due to a mitochondrial problem? Also, what did Mady Hornig say about kallikreunin?

In true biopsychosocial fasion, they would probably argue that what makes the difference between painful and not painful is the negative thoughts and symptom focusing. They would cite research showing that on imaging, even people without complaints have degenerated discs. They would maybe even...

https://holeousia.com/2019/03/21/its-boom-time-in-industry/ Unfortunately the customers have begun to realize it's a scam. CBT/GET don't work for ME/CFS and probably not for MUS either, and IAPT is delivering very poor results.

I can see why Sharpe found that tweet terrifying.

He is past that point. However not everyone knows the story.

In general, patients say they tried to push harder to overcome their symptoms.

That patients believed they could overcome their illness by pushing themselves harder to function normally despite the symptoms is also important: it contradicts the narrative of ME as self-fulfilling prophecy. The insistence that overexertion is harmful is because patients have bad memories...

I've had similar thoughts, but along the lines of people reacting to being powerless by doing the only thing they can: venting and expressing their frustration by calling Sharpe and colleagues names. An article like that of Kelland can plausibly increase the feeling of being powerless and...

And that is merely holding the BPS theories to the same standard as biomedical theories.

My mental model of this is roughly this: There are different competing ideas of varying complexity on the cause and nature of ME. All have some arguments for and against which determine how credible and likely to be true an idea is. Lived experience tells us patients a lot, but it seems to...

Out of fear that ME/CFS patients would take away healthcare resources from the patients with real illnesses, they created a system to prevent ME/CFS from taking up healthcare resources. Now ME/CFS turns out to be a real illness, in the sense of there being abnormal physiology that is difficult...

Sharpe seemed particularly sensitive to this point.