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Excellent. This kind of work is exactly what we need.

Wessely's argument is that it doesn't exist as distinct illness because symptoms from all categories were increased in sufferers. To him that is sufficient evidence to declare it as problem of abnormal perception of symptoms. I don't believe it has ever been shown that such an illness of...

Maybe he followed the #medebate

A high score on a fear avoidance scale doesn't mean that the behaviour of the patient is wrong and needs to be corrected. Someone with celiac disease would presumably score high on it. So treatment makes patients worse? Well, the authors would probably argue that correlation isn't causation...

Dialogue like a description of how the illness affects patients in every day situations? I came back from a visit from the hospital and now would be a good moment to describe how I react to such an exertion. I walked to the hospital and back. I felt increasingly uncomfortable and lightheaded at...

I take my earlier statement back. He seems to be trying to advocate for the science, presumably that means PACE.

Some tweets are so absurdly stupid it's hard to believe it's not an act.

Seems so. It looks like he's trying to bait patients into emotional responses.

Therefore, any study that attempts to document PEM should recruit patients with daily activity levels that are high enough for an eventual decline to clearly register.

Now that I think about it, with actometers there may be a floor effect when activity is already so low that episodes of further decline don't fully register.

Between yesterday and today, something happened that had clear negative impact on me. I don't think it was exertion and am suspecting it was the ricotta I ate yesterday. I needed 3 hours more sleep than usual and am more symptomatic. This would register on an actometer mainly as having woken up...

I noticed this here: https://www.actionforme.org.uk/uploads/2017-2018-trustee-report-accounts.pdf It's a central sensitization study, and White is a coauthor. The lead author describes his interests as follows: Pain phenotypes in functional somatic syndromes and their association with...

Is it enough to stop the BPS people putting out the usual articles on good science being under attack by despicable activists?

It's an important step, but the root of the problem has not been acknowledged yet.

It's a bit unfortunate that so much of the discussion was about superficial issues. Researchers in the field of psychology and psychiatry are essentially being allowed to produce junk science that then goes on to influence guidelines and public perception. And the lack of high quality biomedical...

We need to begin talking with people outside of our community about ME/CFS.

Wasn't one of the gay conversion therapy proponents a mentor of White, Sharpe or Wessely?

Is it because they have somatization disorder, or because somatization disorder doesn't exist but is simply a catch-all diagnosis for any significant health problem that can't easily be diagnosed? The last time I looked at diagnostic criteria for somatization disorder, it seemed to be almost...

A more realistic view is that they're going to feed the audience a lot of bullshit, half truths, and distractions like "PACE followed CONSORT guidelines". That sounds good but is completely irrelevant and not an answer to any criticism. Or they will try to distract with discussion of whether...

So the debate is 3 hours long? Excellent. That should be enough to knock the PACE house of cards over for good. Hopefully (one can dream), the PACE authors are just going to avoid the public debate.