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  1. Hoopoe

    Suggested Pathology of Systemic Exertion Intolerance Disease [...] (2019) Bohne

    Interesting. Maybe patients have adapted to exist in a high lactate state?
  2. Hoopoe

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Maybe the BMJ has cold feet? There were a lot of complaints about this article.
  3. Hoopoe

    Researcher Interactions Patient Representative Reports from Dr Karl Morten's collaborative group, Oxford, UK

    Is it a good moment to raise funds for the Morten team? We want them to keep working on ME and with more funding they could collect more data that will help with a successful application.
  4. Hoopoe

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    He will probably do the nanoneedle test before and after the surgery. There is a lack of evidence that viruses and antibodies are the cause of continued ME so that is not a good argument.
  5. Hoopoe

    Abnormal blood lactate accumulation during repeated exercise testing in ME/CFS, 2019, Lien et al

    They've carved out their niche in society and it depends on them being experts in mental disorders. That role must be separate from that of a neurologist or neurologists would replace them. Not that this necessarily bad. They're just hypocrites.
  6. Hoopoe

    Researcher Interactions Patient Representative Reports from Dr Karl Morten's collaborative group, Oxford, UK

    I don't understand why everybody isn't focusing 100% on finding out what's in the blood that causes problems.
  7. Hoopoe

    Stanford Community Symposium 2018: Phair, Metabolic traps, Tryptophan trap

    I have wondered whether epidemic ME is the same illness as today's ME that is mainly not epidemic.
  8. Hoopoe

    Psychology Today blog platform: "It's All in Your Head - The relationship between contested illnesses and psychiatric illnesses"

    The article creates stigma by negatively stereotyping patients in various ways. I agree that patients are definitely not afraid of having a brain condition. I think we are afraid of being labelled as having a psychosomatic condition because then we would be shunted off to Alice in Wonderland...
  9. Hoopoe

    Abnormal blood lactate accumulation during repeated exercise testing in ME/CFS, 2019, Lien et al

    I read some of the responses. They could be summarized with: they all agreed that activity was problematic, until they started thinking positively and stopped "doing ME" and then they were cured.
  10. Hoopoe

    Clinical symptoms and markers of disease mechanisms in adolescent chronic fatigue following Epstein-Barr virus infection, 2019, Wyller et al

    Vogt: your science is unreliable but we know LP works. How? Just look at this outcome switched uncontrolled study and these anecdotes.
  11. Hoopoe

    Abnormal blood lactate accumulation during repeated exercise testing in ME/CFS, 2019, Lien et al

    I see Vogt and Gundersen are still arguing it's all deconditioning. 2 days ago I did a nice walk and felt ok. Yesterday it was a little shorter. Today I can barely manage 1/3 of the same distance, walk slowly, feel like crap. When standing up, I also had a moment of such low blood pressure that...
  12. Hoopoe

    A general thread on the PACE trial!

    The endorphin release associated with placebos could be part of the body's behaviour control system. It could be seen as the reward for finding a solution a for health problem. It makes sense that it hurts until you find a solution to the pain. Then it no longer need to hurt as much and your...
  13. Hoopoe

    The Stanford Daily: Stanford Medicine professor (José Montoya) fired for violating University rules of conduct (june 2019)

    I would like to know if it had anything to do with his views on ME/CFS. It could be a point of personal conflict.
  14. Hoopoe

    A general thread on the PACE trial!

    There was a 4 cell RCT of immune therapy, CBT vs placebo respectively. No benefit was found. Read Wessely et al comments to this study here: https://sci-hub.se/https://www.ncbi.nlm.nih.gov/pubmed/7709961
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