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  1. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    Is this falsifiable? Would you say that it has been falsified by any studies? I know there was one study that found belief in viral cause vs belief in psychological cause were associated with similar outcomes. Then there's the CPET literature which supports the belief that there exists an...
  2. Hoopoe

    News from Scandinavia

    It's not wrong. They just don't realize that they are fooling themselves with poor methodology and are yet another source of unreliable information, unnecessary and harmful treatments that don't help.
  3. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    I am wondering whether he formally minimized his involvement to protect himself, while letting others do the dirty work of carrying out a clinical trial that he knew was flawed and biased. He is credited as having advised them on clinical trial design.
  4. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    People that made a joke out of the illness in the eyes of the public by portraying patients as essentially imagining an illness and not pushing themselves enough complain about unfair criticism and reputational damage. :rolleyes:
  5. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    Respect for Godwin for being able to keep his friendship with Wessely and critique of PACE separate.
  6. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    Is he maybe referring to the rationale behind CBT/GET? One cannot disprove the false illness beliefs hypothesis when the patient has an unidentified illness, because disproving could only be done by identifying the actual illness and showing that the beliefs are consistent with it. Or maybe not...
  7. Hoopoe

    Patentscope: Prevention and/or treatment of chronic fatigue syndrome

    This is similar to what I've been doing in the last six months. Fruit and berry smoothies, and cooked spinach. Can't say it's making a large impact but it does seem to help. It's also delicious. If by any chance I suddenly end up cured, I'll make sure to let you all know :D. I don't do it to...
  8. Hoopoe

    The associated features of multiple somatic symptom complexes (Creed et al. 2018)

    A higher prevalence of depression and anxiety in the FSS population could be merely the consequence of the "poorly understood" status of these conditions. Patients with poorly understood conditions will find it more difficult to receive appropriate treatment, will encounter more disbelief and...
  9. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    The placebo response in the treatment of chronic fatigue syndrome: a systematic review and meta-analysis. https://www.ncbi.nlm.nih.gov/pubmed/15784798 Is a full recovery possible after cognitive behavioural therapy for chronic fatigue syndrome? https://www.ncbi.nlm.nih.gov/pubmed/17426416...
  10. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    The notion that the PACE authors do not know that their treatment is ineffective is not credible. One does not accidentally switch outcomes in a way that inflates recovery figures by a factor of four (If I remember right), then tries everything they can to prevent independent scrutiny that...
  11. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    The evil deeds committed by PACE authors are obviously not on the same level as that of Nazi war criminals (mass murder), but are evil deeds nonetheless. ME/CFS patients are a marginalized group that is seen as unworthy of receiving medical care and support and the same rights and respct...
  12. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    He is not looking for a battle or he would be here debating with us.
  13. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    Does anyone think this could be in any way interpreted as being against science? Only if you have problems distinguishing between junk science and proper science. Wait... that's exactly his problem isn't it? Mr Jameson is also doing a fine job eroding his credibility as "published researcher" ;).
  14. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    I'm simplifying because I'm exhausted at the moment and can't properly think things through. There must be some consequences. That's the basic thought.
  15. Hoopoe

    Recognizing and Improving Care for ME/CFS, FM and ES/MCS (Canada)

    @Jonathan Edwards is this effective advocacy?
  16. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    I'm not worried. The PACE authors know CBT/GET doesn't work. And no one else seems really interested in CBT/GET except perhaps Crawley, who is doing a fine job eroding her own credibility. However I believe that unless the PACE authors don't face consequences or the UK adresses its junk science...
  17. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    The other day Sharpe also tweeted something which suggested he is concerned with making sure that patients don't offload all responsibilities for getting better on the treating doctor. Which reveals a moralistic view of us patients. So CBT/GET to him may be valuable because it separates...
  18. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    I like the expression banality of evil. https://aeon.co/ideas/what-did-hannah-arendt-really-mean-by-the-banality-of-evil I still subscribe to the theory that the BPSers know exactly what they are doing and simply have no empathy or consider patients unworthy of anything but exploitation and...
  19. Hoopoe

    BABCP Annual Conference and Workshops

    If therapeutic lie is a thing, why not therapeutic outcome switching and p-hacking? If a lie is good and helps the patient, then bigger lies must help even more. Maybe that explains why there is so much BS in this field. I'm having surreal feelings again. Surely this cannot be real.
  20. Hoopoe

    BABCP Annual Conference and Workshops

    Do they mean promising good results while giving a placebo?
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