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Is it at all plausible that neck pain could come from poor posture, which in turn comes from weakness? In the sense that we are exhausted and don't have a good posture because of that. Or much of a posture at all if we lie down a lot. This is relevant because if PWME have neck pain they now...

An updated IOM report which includes a section on treatments would also be useful.

We need to get the NIH to publish a position paper that debunks this ridiculous narrative that PACE is being unfairly criticized, or that patients are hostile to researchers in general or criticize because they "don't like" the findings as opposed to the methodology being terrible and...

Meanwhile evidence that CFS is perpetuated by thoughts and behaviours is yet to be produced. The tricky part is showing that these thoughts and behaviours are not a normal or appropriate response to being ill. You have to take all the factors that are specific to ME/CFS into account. The high...

Can anyone copy and paste the CBRQ here?

That is how we should proceed. It seems likely that subsets exist. With every subset identified, figuring out the remaining ones gets easier.

@Jeff_w how is traveling in a car when you have CCI?

Sounds very good. Almost too good. Let's hope this lasts.

Would it be a good idea to make an experiment with some brain blood flow enhancing intervention to see if it improves cognitive impairment?

She seems a little defensive about MUS. Is her view that MUS are the real somatizers, while true ME patients have an organic illness?

Fatigability is when the person quickly becomes fatigued when doing things, even when they were not feeling particularly fatigued when they started. Within an hour, I can go from feeling relatively energetic to collapsing on bed. This is a problem of fatigability.

Diplomats in China are now also reporting this.

The "loud crickets" explanation seems to make no sense because then there would be a lot of similar cases and we wouldn't be wondering what it was.

My interest is in the plausibility of the idea that cognitive ability declined due to disuse. Presumably this is what the authors think.

Am I the only one that finds this strange? It may well be true that the patient preferred physical activity over talking but this shouldn't normally result in notable deterioration of cognitive ability. Am I wrong? The authors seem to suggest that the cause of the cognitive deteriorarion was...

If you can't move the ball to the goal, move the goal posts... People that tend to define recovery like this are tacitly admitting that they cannot obtain satisfactory recovery rates when recovery is defined the way everyone else understands it.

If the NIH funded the earlier nanoneedle work then they still deserve some credit. They aren't doing as much as they should but they're still doing something, which is more than most other funding bodies are doing. I find it concerning that on Twitter anything the NIH does in relation to ME/CFS...

What about cyclophosphamide? It seems to me that a RCT of it was justified by the earlier Rituximab findings, which are now recognized as spurious. There no longer seems to be a reason to think cyclophosphamide could be effective. Edit: I agree that the article itself is a little confusing. It...

I think long term patients can have a distorted view of recovery would be like. They want to be well again and begin a new chapter in their life where can forget about the time they were ill. They also have been ill for so long they don't remember what normal feels like. Their life is adjusted...

Saying that CFS is perpetuated by thoughts and behaviour is just a nicer way of saying it's all in the head of patients. The patient thinks they have a chronic neuroimmune illness, while Wessely et al claim the condition is reversible by challenging unhelpful beliefs and increasing activity...