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  1. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    @Mike Godwin is a forum member now.
  2. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    Uhm I have a bit of this in me! Maybe psychogenic explanations are popular among doctors that are not otherwise allowed to express creativity and act on pure intuition because medicine is so rigidly regulated.
  3. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    Does Mr Godwin have relevant expertise? If not he may find it difficult to understand why PACE is flawed and tend to trust authority and friends over random strangers on the internet. I think Wessely would be careful who he invites into the debate.
  4. Hoopoe

    13th Invest in ME Research International ME Conference - 1st June 2018

    http://www.investinme.eu/IIMEC13-news-180502.shtml
  5. Hoopoe

    13th Invest in ME Research International ME Conference - 1st June 2018

    I think it was Kristian Sommerfelt
  6. Hoopoe

    Hair and salivary cortisol in a cohort of women with chronic fatigue syndrome, 2018, Roerink et al

    Okra stewed in tomato sauce and onions is not bad at all.
  7. Hoopoe

    Medically unexplained syndromes: irritable bowel syndrome, fibromyalgia and chronic fatigue (2018) Luty

    It ends with It also acknowledges the poor long term followup results in PACE, and reports the recovery outcomes from the PACE reanalysis. Unfortunately it doesn't make clear that this was the analysis as originally planned or that there were no statistically significant differences between...
  8. Hoopoe

    Analysis of data from 500k individuals in UK Biobank shows an inherited component to ME/CFS (Ponting blog)

    If the illness is perceived as being more common in women it could also lead to doctors not looking for it as much in men.
  9. Hoopoe

    Analysis of data from 500k individuals in UK Biobank shows an inherited component to ME/CFS (Ponting blog)

    I think I saw at least one study where less stringent criteria resulted in a male to female ratio that was higher than that seen with more stringent criteria. That is typically interpreted by the patient community as evidence that the less stringent criteria result in more miadiagnoses, but a...
  10. Hoopoe

    13th Invest in ME Research International ME Conference - 1st June 2018

    At some point, advocacy must shift from destruction and opposition to construction and collaboration.
  11. Hoopoe

    Analysis of data from 500k individuals in UK Biobank shows an inherited component to ME/CFS (Ponting blog)

    Can you elaborate? Do some genetic variants occur more often in one gender? If it turned out that this variant here occurs as often in men as it does in women, would this be an indicator that it is not central to ME/CFS, because we know that women are more at risk than men? (I am not sure...
  12. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    From this press release But they just told us that PACE didn't really change anything.
  13. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    Not just ME/CFS. In general patients with poorly understood conditions will not be safe from them until they are exposed as incompetent and shockingly dishonest. They've shown some interest in other conditions, like multiple sclerosis, to which they apply the same pseudoscience. And...
  14. Hoopoe

    Briefing paper for parliamentary debate.

    Thanks. :angel: No more complex analytical activity for me today. I am nervous too, and I'm sure the PACE authors are as well. Even Wessely is active on Twitter.
  15. Hoopoe

    Briefing paper for parliamentary debate.

    My intention was not to defend such statements, but to caution against self censorship and downplaying of what we know about ME. In my view it is clear Emma condemned the BPS treatment and illness model and asked for objective biological aspects of the illness to be acknowledged (without saying...
  16. Hoopoe

    Briefing paper for parliamentary debate.

    I don't disagree with the underlined bit that and think it's a good message. I also agree that patients tend to overstate the evidence and would often be well advised to be more cautious. But I worry that by avoiding the question of which direction the evidence is pointing, and what illness...
  17. Hoopoe

    Briefing paper for parliamentary debate.

    Actually I think that the BPSers were uneasy in their seats when the patient gave her speech to Scottish politicians. Was the patient walking into a trap or breaking free?
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