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  1. Trish

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    :D I'm very good at forgetting. I should have googled it instead trying google translate it.
  2. Trish

    How I rewired my brain in six weeks

    Very well put, @boolybooly. I am old enough to be around to observe the 1960's and 70's hippy adoption of TM among other mindfulness and meditation practices. At that time it was more about self exploration and learning from other religious practices by people who had rejected parts at least...
  3. Trish

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    I'd guess Paul Garner and Live Landmark. Possibly others. All are listed as clinical or university affiliated.
  4. Trish

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    Sure, I'm happy to hear about those who recovered, especially if there are statistically significantly more of them in the active treatment group of a clinical trial than in the control group, and recovery is clinically real and long lasting, not just filling in questionnaires differently...
  5. Trish

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    These guys are so predictable. Assert you beliefs often enough and whinge about researcher harassment often enough and somehow everyone is supposed to believe this crap is evidence based medicine.
  6. Trish

    Closed UK: DecodeME updates, was recruitment thread.

    That study was on people hospitalised with severe Covid, I think, so not necessarily representative of people who had mild or asymptomatic Covid then went on to develop ME/CFS.
  7. Trish

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    Thanks for confirming. It will be very interesting to get feedback from you and anyone else signing up for this.
  8. Trish

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    Is this the same one, currently quoting me £86.50 on Amazon If so, you are paying nearly £100 for connecting it to Visible for a year. That seems excessive, but I guess business is business, and business will charge whatever people will pay.
  9. Trish

    Effect of Central Sensitization in Patients with Familial Mediterranean Fever, Axial Spondyloarthritis, and Both Diseases, 2023, Nur Kaya et al

    :laugh: I'm clearly lacking a fairy godmother. Now I know what's wrong with me, hurrah. Thanks Peter, a great way of showing up the emptiness of this stuff.
  10. Trish

    "Energy-Saving Self Care Cards" from Ricky Buchanan

    I had a quick look at the website. From the glimpse it gives of the cards I can see that some people learning to adjust to disabling chronic illness might find them useful particularly in learning to break down activities into tiny achievable steps and learning to feel OK about that. For an old...
  11. Trish

    Prevalence of Fibromyalgia and [CFS] among Individuals with [IBS]: An Analysis of US National Inpatient Sample Database 2023 Tarar et al

    As far as I can see it was a simple database query and stats package study, with no external funding and done by a group of people. My guess is a student group project.
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