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That seems to be what the authors concluded.

It's not word salad. I enjoyed trying to get my one remaining mathematical brain cell activated to get an overview of what they did. The aim was to see if a particular form of mathematical analysis that has been developed for studying complex processes over time in other situations such as...

That makes sense to me too. I have tended to avoid getting involved in the FND threads because I don't have the energy to follow all the discussions and it's not an area of medicine I know anything about. I understand the reason some pwME are concerned about FND as a diagnostic label because...

I haven't listened to it. This is the blurb: "From ear-splitting aircraft noise and the drone of traffic to the hum of an open-plan office, the world around us can feel loud. But is it getting louder? And is this having any effect on our health - and even on how long we live? We find out when...

If FND was a label meaning you have clear neurological signs, but we can’t find anything on your scans that indicates damage to part of your brain or nervous system, then I think if I were diagnosed with FND I would be relieved to know it wasn't a sign of something known to be irreversible and...

I'm not sure what that waffle means. I assume it's saying better services are needed for LC.

That doesn't seem like a fair characterisation of patients with FND. Just as in ME/CFS, being diagosed and told the only treatment is supportive care is a huge blow when you are suffering from something you don't understand, and nobody else understands, and that makes your life difficult...

Some posts have been copied or moved to this thread: Functional Neurological Disorder (FND) - articles, social media and discussion

I think this is a fairly good, though superficial and uncritical, summary of what is known and not known based on a few of the main US sources of information, NIH, CDC, Mayo clinic. It's written by a PhD student.

I wonder how common your experience is. I don't think I've come across anyone else with that pattern.

My distinction between exertion intolerance and PEM is based on symptoms and functional capacity purely. I was not hypothesising about physiology. I have no idea whether they are physiologically distinct or part of a continuum. So what I am saying is, from my experience, and reading what a lot...

I agree with you, but it also happens to people who are deconditioned at a much lower level of activity than in athletes because their level of fitness is lower, so that's the aspect I focused on in my comment. I nearly added 'and in athletes' but that wasn't the point I was making. I think it...

Hi @JayJay, welcome to the forum. I understand that a forum intended to provide a space for comment on research, including critical comment on claims of efficacy of treatments that are not based on good quality research, is not to everyone's taste. You might find the forum's values help you...

Several people have had dismissive replies to individual complaints. I leave it to them whether they want to share them. The committee are nearly ready to send our letter to the MEA. We'll make it public after we send it. Also any response we receive.

I think to complete the picture of what happens to people as a result of exertion, we need to also include PEF and DOMS So here's my summary: PEF - Post exertional fatigue: fatigue lasting minutes, hours or a day or two in healthy people, particularly associated with deconditioning DOMS -...

I found this article helpful: Jennifer Huizen: What is exercise intolerance?, Medical News Today, Updated on September 20, 2023 https://www.medicalnewstoday.com/articles/exercise-intolerance#symptoms Some quotes: Examples of conditions that cause exercise intolerance include lung and heart...

It's high time these people were stopped from playing silly psychological games with sick people, and, worse, drawing unwarranted conclusions from them. It's harmful, insulting and not good science.

It's a statement of fact, as far as I can see. The article mentions that Dr Tam is running workshops at her clinic with Raymond Perrin to teach the Perrin Technique. Perrin is a UK osteopath, not a doctor, who developed a sort of massage technique that he claims treats ME/CFS. We have a thread...

I think the section quoted makes the project sound much broader than it is. What they seem to be aiming for is a set of PROMS, ie questionnaires that can be turned into numbers. And claiming these will provide useful information for helping clinicians assess each patient, and for service...

The subject of why the MEA is paying for this project has been raised on another thread. I have been looking at what the MEA said: These are the relevant bit of the NICE guideline NICE guideline...