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In the US, some of the behavior change movement goes back to this review paper. Am J Health Promot. 2010 Sep-Oct;25(1):e1-e12. doi: 10.4278/ajhp.090313-LIT-101. Health coaching to improve healthy lifestyle behaviors: an integrative review. Olsen JM1, Nesbitt BJ...

It's mostly about the money. https://pages.questexweb.com/rs/294-MQF-056/images/8386.pdf

Bump starting now.

The elephant in the room is that only 10% of those with ME/CFS are even diagnosed. It was 15 years from my last full time job with disability insurance to actual ME/CFS diagnosis. If not for family support, I likely would have starved to death on the street. The reality for ME/CFS sufferers...

Study: Five years before multiple sclerosis onset: Phenotyping the prodrome http://journals.sagepub.com/doi/full/10.1177/1352458518783662 Press Release: A constellation of symptoms presages first definitive signs of multiple sclerosis...

The US CDC? "As many as half of patients with ME/CFS develop depression at some time during the course of their illness." https://www.cdc.gov/me-cfs/healthcare-providers/clinical-care-patients-mecfs/treating-most-disruptive-symptoms.html

Even minor distress puts you at risk of chronic disease https://www.medicalnewstoday.com/articles/322464.php

Some of the medical professionals I talk to remain absolutely certain ME/CFS is a mishmash of various syndromes, diseases and psychological disorders. That it's a disparate collection of tired, fatigued and depressed people. A wastebasket diagnosis.

I hadn't considered that. Great insight! :)

A game to play is to read the CDC Info for Healthcare Providers and try to figure out which sections were written by Dr. Unger (CDC) and which were written by Dr. Bateman. This was obviously a compromise document, and as others have pointed out, at times can appear self-contradictory. More of...

Agree 100%.

I understand there are excellent exercise physiologists for those paying out-of-pocket. My healthcare provider has over 22,000 doctors, yet not a single "exercise physiologist who understands ME/CFS". This is the current state of medicine in the US. I hope the CDC understands this.

A few weeks ago, I called my healthcare provider (Kaiser Permanente) and asked if they had an exercise physiologist experienced working with ME/CFS patients. I was told no. I then asked if it was possible to get referred out to an exercise physiologist with ME/CFS experience and was told no...

Not unlike Ruqsana Begum, who lost her job due to ME, but is now a kickboxing champion who manages her condition "with a strict diet and training regime". https://www.s4me.info/threads/woman-with-me-won-world-kickboxing-championship.1340/ Edit: A few months back, I emailed Ruqsana Begum...

Another snippet from the CDC Info for Heathcare Providers (bolding in original):

Miriam Tucker covers the CDC "Information for Healthcare Providers" changes (free Medscape account required). CDC Launches New ME/CFS Guidance for Clinicians https://www.medscape.com/viewarticle/899316

A snippet worth sharing.

My ongoing frustration is that the Information for Healthcare Providers states primary care doctors can create an effective treatment plan, but really doesn't provide any specific guidance on how to do so. Primary care docs have not been trained on this disease, so how can they create an...

This document was already more than 6 months past the promised delivery date. But I suppose I shouldn't look a gift horse in the mouth... it is overall a vast improvement. :)

Major healthcare providers often won't touch treatments for which there isn't strong evidence. (Then again, they throw antidepressants at patients like candy.) It would have been nice if the CDC would have incorporated more of the treatment recommendations from the recent expert clinician...