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Okra stewed in tomato sauce and onions is not bad at all.

It ends with It also acknowledges the poor long term followup results in PACE, and reports the recovery outcomes from the PACE reanalysis. Unfortunately it doesn't make clear that this was the analysis as originally planned or that there were no statistically significant differences between...

If the illness is perceived as being more common in women it could also lead to doctors not looking for it as much in men.

I think I saw at least one study where less stringent criteria resulted in a male to female ratio that was higher than that seen with more stringent criteria. That is typically interpreted by the patient community as evidence that the less stringent criteria result in more miadiagnoses, but a...

At some point, advocacy must shift from destruction and opposition to construction and collaboration.

Can you elaborate? Do some genetic variants occur more often in one gender? If it turned out that this variant here occurs as often in men as it does in women, would this be an indicator that it is not central to ME/CFS, because we know that women are more at risk than men? (I am not sure...

From this press release But they just told us that PACE didn't really change anything.

Not just ME/CFS. In general patients with poorly understood conditions will not be safe from them until they are exposed as incompetent and shockingly dishonest. They've shown some interest in other conditions, like multiple sclerosis, to which they apply the same pseudoscience. And...

Thanks. :angel: No more complex analytical activity for me today. I am nervous too, and I'm sure the PACE authors are as well. Even Wessely is active on Twitter.

My intention was not to defend such statements, but to caution against self censorship and downplaying of what we know about ME. In my view it is clear Emma condemned the BPS treatment and illness model and asked for objective biological aspects of the illness to be acknowledged (without saying...

I don't disagree with the underlined bit that and think it's a good message. I also agree that patients tend to overstate the evidence and would often be well advised to be more cautious. But I worry that by avoiding the question of which direction the evidence is pointing, and what illness...

Actually I think that the BPSers were uneasy in their seats when the patient gave her speech to Scottish politicians. Was the patient walking into a trap or breaking free?

Also, just recently, a court in the US decided that Brian Vastag was objectively severely impaired by CFS. We may not know why it's happening but that doesn't mean we know nothing and cannot prove anything.

Brief statements like "but it's physical" yes. Due to the effort it takes to think, formulate thoughts and type this is often the only thing patients say, but they could write much about the reasons they settled on this position. I was "treated" with illness denial early on and it was a...

I think the BPSers take this position to discourage debate over whether the illness is best understood as psychosocial problem or organic illness, because the facts are not in their favour, even if it is not understood what ME really is. I would suggest that avoiding this debate means they were...

If this was well done over a long period of time it could be quite interesting. Unfortunately this kind of approach would need some sort of objective markers of health or disease to avoid the pitfall of conflating fluctuations and placebo responses with genuine improvement in health. Over a...

PACE led to a reinforcement of the bad way things were being done. Accurate reporting of the findings would have resulted in change, some of which we are seeing now (despite still being held back by the effects of PACE).

Adopting a view of the illness as primarily a problem of irrational beliefs will diminish empathy. Psychiatry seems to have a preference to view illnesses in this way and unsurprisingly has an empathy problem. I say preference because the etiology is unclear and different interpretations are...

This tells me they have an empathy and science problem.

Thanks, this is interesting. One gets the impression that the IOM report is very threatening to the psychosomatic paradigm. As it should be :devilish:.