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  1. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    Interesting development
  2. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    The treatment of CFS according to Mr Jameson: finding enjoyable activities and believing in your ability to achieve your goals.
  3. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    I think they're just unwilling to seriously consider the possibility that the effectiveness of the therapy might be an illusion. In their mind, they're competent and an expert and that makes their observations and speculations reliable and they need not concern themselves with regression to the...
  4. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    I think he's the person known by the Wikipedia username "sciencewatcher". He wrote this article http://www.scirp.org/Journal/PaperInformation.aspx?PaperID=67193 With friends like this, who needs enemies. :facepalm:
  5. Hoopoe

    Treating patients suffering from myalgic encephalopathy/chronic fatigue syndrome (ME/CFS) with sodium dichloroacetate, Comhaire 2018

    Yes, but more research would eventually find ways to stratify patients according to their subtype and then find treatments and diagnostic tests for that subtype. We just haven't had enough funding to do this, and I believe that's because health authorities and funding bodies are reluctant to put...
  6. Hoopoe

    Closed meeting June 28, 2018 at National Institutes of Health

    What does it mean that such a meeting is held? Is this how grant applications are normally reviewed, or is it special meeting justified by particular circumstances? This bit suggests there is special emphasis. My wild fantasy: they will shove as much money as they can into grants, word will...
  7. Hoopoe

    Re-framing GET as pacing, or vice-versa

    Make your own meme here: https://imgflip.com/memegenerator/Roll-Safe-Think-About-It
  8. Hoopoe

    Treating patients suffering from myalgic encephalopathy/chronic fatigue syndrome (ME/CFS) with sodium dichloroacetate, Comhaire 2018

    It is not an innocent thing to say that the illness was caused by emotional traum because it can negatively affect the relationships the patient has with family members or result in them doing costly long term therapy for a problem they don't have. It is of course possible that patients have...
  9. Hoopoe

    Treating patients suffering from myalgic encephalopathy/chronic fatigue syndrome (ME/CFS) with sodium dichloroacetate, Comhaire 2018

    @ME/CFS You know about recall bias, right? https://en.wikipedia.org/wiki/Recall_bias If society tells patients that CFS is related to emotional trauma, patients may try hard to find it in their past. The suffering associated with the present illness may also influence how past events are...
  10. Hoopoe

    Cortical hypoactivation during resting EEG suggests central nervous system pathology in patients with chronic fatigue syndrome (2018), Montoya et al

    Cortical hypoactivation during resting EEG suggests central nervous system pathology in patients with chronic fatigue syndrome M.A.Zinn, M.L.Zinn, I.Valencia, L.A.Jason, J.G.Montoya https://doi.org/10.1016/j.biopsycho.2018.05.016 sci-hub link...
  11. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    In addition to what Trish said, maybe he's just desperate and has no idea how to deal with the situation.
  12. Hoopoe

    Chronic pain is not a disease (Psychology Today, 27 May 2018)

    If an effective and profitable treatment were found tomorrow, chronic pain would be reclassified as a disease on the same day.
  13. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    The notion that patients are suffering from fear of exertion while simultaneously having the tendency to overexert themselves is also incoherent.
  14. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    It doesn't look like CBT/GET work when forced on a person being sectioned for the apparent purpose of giving them this treatment. I don't see the Hansen family praising Fink for curing Karina of her false illness beliefs.
  15. Hoopoe

    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    A recording of the presentation is not yet available on YouTube. Going from memory, he found statistically significant differences in IgG, something related to lymphocytes (lymphocyte counts maybe?), and something else (also related to immune function).
  16. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    I am unclear about the exact meaning of deconditioned and "normal muscles". Can muscles not be deconditioned despite being normal? Is deconditioning different from lack of fitness, or does it merely indicate a certain severity of lack of fitness?
  17. Hoopoe

    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    Did all patient reps agree that CBT/GET need to go?
  18. Hoopoe

    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    That's covered in the document. Along with a description of how patients are affected by the illness.
  19. Hoopoe

    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    But enough of these thought experiments. It is not a good idea to squander our credibility by recommending unproven treatments and the likely outcome is that NICE will not remove CBT/GET from the recommendations but instead add these other unproven treatments. So let's do this instead: get NICE...
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