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  1. Hoopoe

    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    I proposed that despite seeing this. The thought was that if NICE is unwilling to say that patients should receive no treatment, then we could at least get them to recommend some fairly harmless supplements over potentially dangerous GET. It's a political move. But I agree it makes us look like...
  2. Hoopoe

    "Is fatigue a disease-specific or generic symptom in chronic medical conditions?" (Dutch CBT proponents involved)

    How can we put a stop to this? There is clearly a systemic problem with researchers just spewing self serving bullshit instead of doing a proper job. You don't need to read their studies anymore because you know that the conclusion will inevitably be: CBT can treat everything effectively and...
  3. Hoopoe

    Janet Dafoe - The Whitney Plea

    I feel uneasy when Collins is getting criticized harshly.
  4. Hoopoe

    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    Why not offer checking for common comorbidities such as POTS, OI, food intollerances, and all the thing slisted in here? Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5474682/ I know you don't...
  5. Hoopoe

    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    Psychological therapy for medically unexplained symptoms https://eprints.soton.ac.uk/415890/ Cognitive Behavior Therapy for Medically Unexplained Symptoms: A Systematic Review and Meta-analysis of Published Controlled Trials https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5559983/
  6. Hoopoe

    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    I think that significant psychological harm could be avoided merely by having doctors confirm that this isn't something patients can control, and not psychogenic. In doing so they protect the patient from frustrated family members, employers, teachers, and probably also are in better position to...
  7. Hoopoe

    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    Invest in ME pointed out that the Lightning Process is mentioned in the scoping document.
  8. Hoopoe

    Me-ICC exclusions

    These authors made similar claims for the CCC. It is not accurate to say they claimed that the IOM criteria select patients with depression as they excluded patients with depression beforehand. Rather they claimed that the IOM criteria "tend to select patients with depressive symptoms." with no...
  9. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    Sharpe has proven himself to be a master actor and gaslighter. Still pretending that everything is OK and it's only some silly patients that are misunderstanding everything.
  10. Hoopoe

    Michael Sharpe skewered by @JohntheJack on Twitter

    Ask him why he thinks unblinded subjective self reporting produces reliable results, and how he can defend this view in light of the rest of medicine consdering this methodology flawed, and whether he thinks that homeopathy could have obtained positive results as well with such methodology...
  11. Hoopoe

    OMF/Ron Davis Research Update May 2018

    It sounds like the nanoneedle biosensor is very sensitive as it can detect this abnormality even in mildly ill patients. Which probably means that there's going to be other illnesses with the same problem. It will still be revolutionary.
  12. Hoopoe

    (Not a recommendation) BMJ Opinion: Missing the psychosocial diagnosis—a form of institutionalised malpractice

    Non cardiac chest pain is often costochondritis or gastroesophageal reflux disease. Maybe panic or anxiety aren't mentioned because these two common problems haven't been ruled out (not to mention various other problems that can cause chest pain), and having anxiety in a situation with chest...
  13. Hoopoe

    OMF/Ron Davis Research Update May 2018

    The best part is that they're going to publish their findings and make the severely ill study data available. This should stimulate interest.
  14. Hoopoe

    OMF/Ron Davis Research Update May 2018

    KIR locus. Edit: it's related to NK cells. See here https://www.ncbi.nlm.nih.gov/books/NBK10135/
  15. Hoopoe

    Psychogenic amnesia: syndromes, outcome, and patterns of retrograde amnesia (Harrison et al, 2017)

    It seems to be a thing: Conscious sedation interview for psychogenic pseudosyncope https://sci-hub.hk/https://linkinghub.elsevier.com/retrieve/pii/S0163-8343(13)00068-6 Drugs used in the linked study: midazolam and methohexital (used in anesthesia). I know that drugs for anesthesia can make...
  16. Hoopoe

    Psychogenic amnesia: syndromes, outcome, and patterns of retrograde amnesia (Harrison et al, 2017)

    Are you saying that he was given a mind altering drug and then interviewed? It does sound a bit like it.
  17. Hoopoe

    Psychogenic amnesia: syndromes, outcome, and patterns of retrograde amnesia (Harrison et al, 2017)

    It occurred to me that finding more psychological factors in patients with otherwise difficult to explain symptoms could merely be a consequence of the diagnostic algorithm, which is something like this: First they rule out the most serious organic illnesses. Then the most common organic...
  18. Hoopoe

    Psychogenic fever: how psychological stress affects body temperature in the clinical population (Oka 2015)

    Is there an experiment that can reliably induce fever through what can be reasonably called psychological stress?
  19. Hoopoe

    S4ME Q&A with Prof Chris Ponting - Question Collection Thread

    What do you think about EUROMENE? Do you have any plans for collaboration? I'm asking because the US seems to be moving ahead with research while most of Europe is about 30 years behind while it could contribute significantly to research.
  20. Hoopoe

    United Kingdom: ME Research UK (MERUK) News

    Why is anyone surprised that the LP trial reported positive results? That is the expected result in an unblinded trial with subjective measures involving an intervention that consists of brainwashing to deny one's symptoms.
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