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They must put some money aside for ME/CFS research. It is unnaceptable that there are such large gaps in our knowledge about an illness that is relatively prevalent and disabling.

This conference is good (for being the first). Thanks for tweeting.

Can I see this "documentation"? My expectation is something along the lines of a Chalder or Wessely paper presenting fantasy as fact.

No way that robots can replace humans. Unless maybe the robots wear blue cardigans or some similarly impressive equivalent.

I think he is not applying the IOM criteria correctly. Going from my flawed memory, he used a definition of PEM that would allow a person feeling tired after exertion to count as having PEM. During the NIH common data elements public feedback period it also became apparent that Jason has a view...

The first world war is long over, so it's difficult to say with certainty what shell shock was and wasn't. They will no doubt claim that shell shock was psychogenic and then draw parallels to whatever other illness they want to psychologize. Proof will be absent as usual and they will expect...

Then patients have their beliefs questioned, re-evaluate them and end up with even stronger beliefs and a desire to correct the misconception that their illness is merely a belief. Which then appears to support the idea that patients have particularly strong illness beliefs. The context matters.

Funny, I thought that labelling patients as having a fashionable illness was itself quite fashionable in certain university departments among confused old men who think it's about being tired all the time. Although looking at his picture, this guy doesn't have the excuse of old age.

This will have limited success at best. It's not really possible to stop filesharing.

People with laxity of the EDS kind do seem to get a lot of symptoms that have some overlap with ME though.

It's difficult to critize a model that is vague and extraordinarily broad at the same time, since it can mean almost anything. Simple questions and answers are more valuable than complex ones.

No news, sadly, but that was predictable. I would have liked to hear about plans to increase funding further. Current funding isn't enough to make a difference fast enough. At least we were represented and acknowledged which is something.

What makes you think that they switched?

I think that partners will be declared dysfunctional and illness belief reinforcing once this approach fails to work. The reason patients don't engage with CBT is because it's the wrong treatment and partners will likely start viewing it that way too. Unfortunately it could also harm the...

Someone explain this to me please. They do what with the nose?

http://sci-hub.hk/http://biochemsoctrans.org/lookup/doi/10.1042/BST20170503

Yes. Some patients on Twitter seem to be buying Sharpe's excuses. He is not giving any real answers to the bigger problems and just looking for ways to assume the "misunderstood reasonable researcher" role.

Edwards R. is revealing something about the way they see themselves by making a comparisons to religious explanations for ill health.

I keep saying there is an issue with glucose. Maybe I'm actually right :D