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  1. Hoopoe

    Clinical trials & what we need from them

    I find it difficult to picture an improvement in health without some improvement in activity levels, even in the most intellectually inclined person. That's based on my experience as intellectually inclined person. When in good health, a walk to the park is enjoyable and effortless and a good...
  2. Hoopoe

    Henrik Vogt: IOM review panel biased by patient influence

    The key thought here seems to be that patients should not have power. Psychogenic diagnoses are a way to control patients, aren't they?
  3. Hoopoe

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    Their PR strategy seems to be stubbornly insisting that their position is the correct one while avoiding real debate.
  4. Hoopoe

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    Patients undergoing ATP were also told it could not cure them if I remember right. Therapists probably also favored CBT and GET over ATP.
  5. Hoopoe

    CBT- Jen Brea Twitter

    Trying to collaborate, find common ground, etc with Sharpe et al undermines efforts to improve the situation for patients. They do not care about the well being of patients as their actions clearly show.
  6. Hoopoe

    CBT- Jen Brea Twitter

    It's too easy for patients to believe in treatments based on hearsay. I have a flattened pituitary as well and as far as I know this isn't uncommon and doesn't necessarily produce any symptoms. Yet someone could mistakenly think that this represents a meaningful structural brain abnormality...
  7. Hoopoe

    Dutch Health Council on ME/CFS tomorrow on national news

    Very nice. What country will be next?
  8. Hoopoe

    Medscape: Commentary - Psychotherapy Is 'The' Biological Treatment

    From a certain point of view, it is true, but the biology that can be theoretically influenced by psychotherapy is probably much more limited than what is typically claimed. Given the many wrong claims about psychotherapy supposedly having an effect on disease I think skepticism as default...
  9. Hoopoe

    A step towards a new delimitation of functional somatic syndromes: A latent class analysis of symptoms in a population-based cohort study 2018

    I find this worrying because these authors are proponents of the "bodily distress syndrome" and it sounds like they intend to create a psychological diagnosis that encompasses all unexplained states of multi-symptomatic illness. If you thought CBT/GET was bad, this has the potential to be ten...
  10. Hoopoe

    A step towards a new delimitation of functional somatic syndromes: A latent class analysis of symptoms in a population-based cohort study 2018

    A step towards a new delimitation of functional somatic syndromes: A latent class analysis of symptoms in a population-based cohort study 2018 Marie Eliasen, Andreas Schröder, Per Fink, Svend Kreiner, Thomas Meinertz Dantoft, Chalotte Heinsvig Poulsen, Marie Weinreich Petersen, Lene Falgaard...
  11. Hoopoe

    Action for ME has joined S4ME

    Haha. Good to know these articles are making a real difference.
  12. Hoopoe

    Dr. Bateman's Summary of Clinicians' Summit March 2-3, 2018

    "There was an unanimous rejection of the PACE trial recommendations" at 28:20
  13. Hoopoe

    Managing fatigue in postural tachycardia syndrome (PoTS): The Newcastle approach

    Link to paper https://sci-hub.hk/https://doi.org/10.1016/j.autneu.2018.02.003
  14. Hoopoe

    Diagnosis and Treatment of Chronic Fatigue Syndrome and Myalgic Encephalitis: It's Mitochondria, Not Hypochondria - by Sarah Myhill

    I seem to have some glucose regulation issues or something to do with energy metabolism, nothing major, but keto has been harmful whenever I've tried it. Last time I tried it I also had episodes of abnormal brain activity at night ("a storm in the head"). Do you think this suggests an issue with...
  15. Hoopoe

    MUS on BBC Devon

    The idea that medically unexplained symptoms represent a specific clinical entity is idiotic to begin with. I'm happy that first patient got better but I can't avoid thinking that she is jumping to all sorts of conclusions based on her response to antidepressants. Responding to a medication...
  16. Hoopoe

    Any experiences with chronic sinusitis?

    Drinking milk kefir regularly appeared to cause chronic sinusitis.
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