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Whether CBT is about curing or coping depends on the context. If the researchers/therapists are promoting their therapy, they will claim it can cure by changing the perpetuating factors. When they are responding to criticism the CBT is suddenly about coping.

This is a hard hitting piece.

Dr Unutmaz is motivated to build a good relationship with the patient community.

Was it blinded?

Come on, don't fund Crawley. She's incompetent and will just delay real help for these children by publishing poor science. Plus you're making a laughing stock of yourself by funding someone who thinks the illness can be treated by telling it to stop.

Agreed. However the apparent existence of PEM in other conditions could be due to inadequate assessment tools (questionnaires). Not long ago there was a repeated CPET PEM paper where ME/CFS and MS were clearly separated on the basis of the 2nd day CPET results (that's how I remember it anyway)...

A review of metabolomic abnormalities. In general reviews are useful to lower the entry barrier for new researchers. There is much poor quality information out there. I would like to see more post-mortem studies. They could greatly speed up progress. It would be good if studies included...

Exactly. PEM is difficult to manage because I can feel good while doing too much, and only start feeling bad afterwards (usually next day).

It would be nice if the S4ME community arrived at a consensus and produced a recommendation that's signed "The Science for ME community" or something along those lines. Get our brand out there ;)

Ask patients about the illness onset. Even if they have been successfully minimizing PEM for the last few years, they should vividly remember how their life fell apart with the onset of the illness and their failed attempts to resume their previous activity levels.

I am responding without reading more than the original post (which should prevent subsequent responses influencing my view). I don't think the DSQ does a good job at capturing PEM. It sounds like this refers to an effect that occurs during exercise, and if so, I don't recognize this as PEM...

Poor water retention leading to drinking and peeing often and liking salt a lot?

Reversing the association, why are cognitive issues and poor sleep risk factors for smoking? Is there an interpretation that involves nicotine and the nervous system?

Wouldn't inability to perceive and report illness count as complete cure?

I propose that from now on we use the term "mega placebo therapy" to refer to LP. :D

So many grand claims in a few paragraphs.

https://www.coyneoftherealm.com/blogs/mind-the-brain/better-days-when-plos-blogs-honored-my-post-about-fatal-flaws-in-the-pace-chronic-fatigue-syndrome-follow-up-study-2015

What a dishonest weasel. Every chronic illness with sufficient impact causes psychological suffering. That doesn't mean it can be cured by treating the psychological suffering. Yet that is exactly what these people have been been claiming to be able to achieve by publishing dishonest, even...

If you have a checklist with symptoms, the symptom profiles will tend to converge as number of checked symptoms increases. Since symptom clusters is just a different way to represent this data, you're obviously going to find this correlation. You cannot draw this conclusion without a control...