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Shouldn't this be highlighted? A collection of stories that show the dark side of LP, to counter the relentless promotion of LP as some sort of miracle cure?

My name is Jon Notphilparker and LP worked amazingly well for me.

I wonder how many here have this. This could also explain a few things such as autonomic dysfunction.

I think we can thank Unrest film and the parliamentary screening for this.

Isn't disabled or sick people dying an acceptable side effect to the politicians that made these policies?

Unfortunate name for a doctor with interest in ME/CFS. :D

The main thing to know is that the idea of the powerful placebo was based on an article published in 1955 which jumped to a conclusion involving the healing power of suggestion instead of carefully considering other explanations for why patients often improved even with a sham treatment. Some...

There has to be a Seahorse analyzer in some university in his area. The author could use that to compare pre and post treatment results and objectively demonstrate some improvement of mitochondrial function. That would be more credible that an open label study with subjective outcomes.

This is a weak study. Needs more rigorous methodology, blinding and objective measurements of PDH and patient function. I wonder if an extended oral glucose tolerance test with lactate measurements could be useful.

MUPS itself is such an idiotic concept. It's a logical contradiction to say that some combination of symptoms is the same underlying problem as some other different combination of symptoms merely because they're both as of yet unexplained. If they're unexplained, then they're unexplained! These...

Wow, I want to know what happened there. I am guessing he did not get along well with the other two reviewers and there were fierce debates. Was this the final outcome?

It was probably an MRI, which is not the right kind of scan for this.

Fluctuating. Seems to very slowly get worse over time but it's hard to distinguish that from consequences of a sedentary lifestyle and aging.

If these brain scans cost $5000 (the figure given by Elzakker for his own study) then this is $600000 for scans alone. That's why we need government funding. However, crowdfunding by patients can help researchers make pilot studies that then enable big government funded studies like this one.

Watanabe et al. have received funding to conduct a 120 participants PET brain imaging study. The primary outcome: Secondary outcomes: Details here https://upload.umin.ac.jp/cgi-open-bin/ctr_e/ctr_view.cgi?recptno=R000033257 This group has previously published a ME/CFS neuroinflammation...

This tech can detect brain inflammation.

Doesn't Psychology Today have a record of writing poor articles? This seems like a clear improvement.

When you have time, I would like to hear what makes this study nice. Is it nice because of good methodology or because it answers an important question? It seems to tell us that in the brain too, the abnormalities may only appear with exertion. Does this study make it more or less likely that...

I created a thread for this paper https://www.s4me.info/index.php?threads/exercise-induced-changes-in-cerebrospinal-fluid-mirnas-in-gulf-war-illness-chronic-fatigue-syndrome-and-sedentary-control-subjects.931/

Exercise – induced changes in cerebrospinal fluid miRNAs in Gulf War Illness, Chronic Fatigue Syndrome and sedentary control subjects https://www.nature.com/articles/s41598-017-15383-9 By James Baraniuk and Narayan Shivapurkar.