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And this has always been a big problem that this community is up against. When a person who is ill and suffering goes to a Dr and gets a diagnosis the person may well have zero knowledge of that illness and accept the Dr's conclusions. As a result the powers that be in the UK (and I presume...

@dave30th Well I thought you behaved admirably. And I thank you.

So all of David Tuller's work has/will come to naught because he made a snarky comment about Lloyd. Good to know. Maybe you can volunteer to engage with these researchers. We wait with baited breath. ETA: sorry just had to come back and add that DT has done so much for this community and...

Science requires debate/discussion. @Action for M.E. are still around whether PwME like it or not and so IMO they are very welcome to be here. With the caveat that joining and then remaining silent and not engaging with other members is quite creepy. In other words . . . Would like to see...

Probably got characterised as a bomb threat. Tick Tock.

@adreno Can you describe your use of Mutaflor; what dose you used and how long before symptoms abated and what type of symptoms if you don't mind sharing? I'd be interested. ETA: didn't see above post.

While it doesn't include ME there is actually a book on the subject: http://ca.wiley.com/WileyCDA/WileyTitle/productCd-0470890657.html Masquerading symptoms: Uncovering Physical Illnesses that present as psychological problems

Is there any record of the panel discussion?

Maybe one day when we're more settled here we can come up with a system that scores these things. For now I'll volunteer the pink JPM for a two thumbs down score. I expect with the situation we find ourselves in (although rapidly changing thankfully) that there might need to be a score of...

Is it normal for the BBC site to not take comments? Also, they provide Ms Lipman's twitter address if anyone wants to thank her.

I found this: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3099256/ Don't know if it's helpful but thought it might be.

I have to admit this Dr with ME seems (or so it feels) like the tip of the iceberg in that all of a sudden PwME are everywhere sharing their story. Where were they last year -- 5 years ago etc? Is there an epidemic occurring?

The description of cfs is short but very on point. Good to see they understand.

Is it possible to paste a contact for those not connected to face book?

It just occurred to me to post what TED says about TED talks. The link provides their rules for giving a talk: http://storage.ted.com/tedx/manuals/tedx_content_guidelines.pdf ETA: clearly TEDx Bristol has been co-opted by people who know squat about science (or don't care).

Oooo, I've got this one. Cruella de Ville

Or correlating the incidence of "chronic fatigue" with depression in teens. High incidence of both and prevalence of correlation. Betting a jar of (invisible) magic beans.

More info: http://www.exeter.ac.uk/mooddisorders/thinktank/

There are ME advocates trying to get Ampligen approved for use in Canada...

Just a short note you might not have considered. I don't know how long you've been ill but whatever you have learned from experience about your symptoms you will have to relearn (or simply adjust). What you know now about your ME will change over time. I think this is true for everyone to...