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  1. Snowdrop

    Unrest film - Jen Brea

    That's an interesting twist. But then I noticed that AfME were partners of some sort (sorry already can't remember specifics) on the Unrest site. Holgate & Chowdhury trying to shine up their image in the ME community. I'm inclined to not be in a great hurry to be forgiving of people who have...
  2. Snowdrop

    As a psychologist I see the fantasy of neoliberal values having a devastating effect on mental healt

    TO my understanding Neoliberal means corporate or technocratic rule. Corporations co-opted Milton Friedman's new liberalism for their own benefit and use it with an Orwellian meaning.
  3. Snowdrop

    The presence of co-morbid mental health problems in a cohort of adolescents with CFS (2017) Chalder et al.

    They're teenagers. The very definition of anxiety and volatile mood. :rolleyes:
  4. Snowdrop

    Bizarre sleep pattern

    I alternate between getting only 6 hours sleep which leaves me completely unable to manage my usual limited functioning and 14 hours of sleep which if I manage that for several weeks/months allows something more like a best baseline functioning which I do more at my peril. Even on my good days...
  5. Snowdrop

    As a psychologist I see the fantasy of neoliberal values having a devastating effect on mental healt

    Yes, thanks @Wonko This is my bad. I see they are visible in the welcome section but did not when looking. Poorly functioning at the moment.
  6. Snowdrop

    As a psychologist I see the fantasy of neoliberal values having a devastating effect on mental healt

    Thank you for that wise ruling. There is parsing each word for the literal meaning of a thing and then there is the intent of a rule. It is important to consider the concerns of the people posting over and legalistic rendering of a rule. Wording of any rules can only be a guide not an...
  7. Snowdrop

    Some good resources for gut health?

    Hi @markiemark I found this not long ago: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4425030/ Don't know if it would be of any use. There are lots of references to troll through at the end.
  8. Snowdrop

    Will The UK Establishment Finally Stop Denying The Reality Of ME? Huff Post

    Perhaps we can give the article lots of traffic.
  9. Snowdrop

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    Can't see that anyone has done that here. I think we're all on the same page vis a vis EC.
  10. Snowdrop

    Can physical assessment techniques aid diagnosis in people with CFS/ME? A diagnostic accuracy study, 2017, Perrin et al

    The coeliac plexus is for the rest of us --the solar plexus and one of the four Perrin points. The other three are: left breast area where two sensory nerves join mid point of the spine top of head...
  11. Snowdrop

    Do you have throat problems?

    Yes, I don't know about the redness but I have a chronic cough and often sore throat, tender glands. Although I sometimes wonder if this is due to MACS as opposed to ME proper. It's worse at the moment and it's been an utterly glorious fall and I've been laying on a lounge chair in the...
  12. Snowdrop

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    I'm not entirely clear on the structure of the TED talk universe but I think Jen Brea's talk was an actual TED talk and Esther Crawley's a TEDx talk. TEDx is not the same calibre it's labelled as a TED like talk organised by various local pods. I've never seen EC talk either and don't have the...
  13. Snowdrop

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    We need to find parents of children who've been seen by Crawley who are willing to speak up and counter the Sainthood narrative.
  14. Snowdrop

    When the revolution came for Amy Cuddy

    I like the line: "Behavioural Priming: It's all in the mind, but who's mind" Wish I'd thought of that tag line for the BPS group and whatshername's book. Who's mind indeed.
  15. Snowdrop

    Unrest film - Jen Brea

    Bit of a tangent. . . I'm hoping this and other positive media stories will reach Martine McCutcheon. As a celebrity and sick person she has done such harm to the community IMO Would love to see that rectified and some celebrity somewhere find this to be a just and worthy cause to bring into...
  16. Snowdrop

    Hypothesis piece by Amy Proal, a microbiologist with ME/CFS

    And if you click on the top bar 'basic concepts' she has other material. Interesting because there has been some previous chatter on that other site about vitamin D and she has much to say about harm in supplementing quoting studies she says are high quality. I of course can't speak to the...
  17. Snowdrop

    John The Jack / A Response to Fiona Fox

    There was a comment beneath the blog that linked to some written evidence submitted suggesting some of the same points-- journalists are not independent--experts keep getting things all wrong. . ...
  18. Snowdrop

    Unrest film - Jen Brea

    Unrest is also showing at Arts Picture House in Cambridge October 22nd.
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