Search results

  1. Snow Leopard

    UpToDate ME/CFS information

    These sorts of guidelines are a design by committee and I suspect there are some steadfast CBT/GET supporters involved.
  2. Snow Leopard

    [Just a registration] Paediatric immune dysregulation disorders - FITNET plus from Elise van de Putte ISRCTN12612526

    Wow, she really does not like us at all. The funny thing is, quite a few people on this forum have likely read far more scientific research than she has and I bet they can can more accurately describe all the possible biases of such research.
  3. Snow Leopard

    "Abnormal illness behaviour" and the missing citations.

    Here is Pilowski's Illness Behaviour Questionnaire: http colon slash slash psychology.okstate.edu/faculty/jgrice/psyc5314/ibq.pdf
  4. Snow Leopard

    UK CMRC 2018 Conference - Rachel Hunter (health economist)

    If an illness is "psychosomatic" then it is explained. A 'functional disorder' means people haven't done their jobs yet.
  5. Snow Leopard

    Episode of Australian current affairs program, “Insight”, on ME/CFS on October 16, 2018

    I hope it is okay. The problem is when journalists don't quite understand the issues. For example if they let the claim there is evidence for GET slide through, putting subjective self reports in nonblinded studies on the same level as randomised controlled trials, when really there is an...
  6. Snow Leopard

    Is ME an immunological disease?

    When you have underpowered studies, non homogenous patient groups and without a very strong effect, some of those studies are necessarily going to have null results. I strongly suggest meta analysis of the NK Cell cytotoxicity and TGF Beta results will show a modest effect, the problem is that...
  7. Snow Leopard

    Cases of Acute Flaccid Myelitis in Minnesota and other states

    That is roughly 1/1,000,000. Some literature state that the underlying numbers (due to all causes) as a hypothesis from the underlying literature are around 1/100,000 annually and numbers that are an order of magnitude lower than this may suggest reporting/recording of data issues.
  8. Snow Leopard

    Applicants needed for Columbia ME/CFS Research Center Community Advisory Committee

    Hi everyone, just letting anyone who has applied and is wondering what is going on with this, I have heard no decisions have yet been made and things are going to start to get underway this month.
  9. Snow Leopard

    Neurophysiology of pain in ME and FM - unpublished study by White and Bourke - CFS research Foundation/AfME

    They just quoted p values, no effect sizes or actual data, and no underlying methodology so it's hard to say what they actually measured.
  10. Snow Leopard

    (not a recommendation) What if exercise makes you worse?

    Same here. Duration won't build fitness (and won't have much measurable benefit), brief intensity will.
  11. Snow Leopard

    LP coach on research, Lightning Process and ME (Norway)

    Yes. We retreat to the internet as it is a "low energy" activity. If we had energy we wouldn't be stuck on the internet. That comment was obviously made by someone who has chosen not to listen/learn about the lived experiences of people with ME.
  12. Snow Leopard

    Petition: Per Fink Should Not Spread Lies about ME at Columbia University!

    Agreed. Better to criticize than silence. "extremism" LOL. Direct action (asking for deplatforming) is not extremism. (serious violence is extremism)
  13. Snow Leopard

    Cases of Acute Flaccid Myelitis in Minnesota and other states

    The question is whether they are isolated cases or part of a distinct infectious outbreak which would likely be of enteroviral origin. I am curious to know the pattern of symptoms (unilateral vs bilateral?), but a press release doesn't reveal this. There are long term health consequences, I...
  14. Snow Leopard

    Stanford Community Symposium 2018: Phair, Metabolic traps, Tryptophan trap

    According to the hypothesis, SSRIs would make things worse. See: https://www.ncbi.nlm.nih.gov/pubmed/10721121
  15. Snow Leopard

    The effects of warm water immersion on blood pressure, heart rate and heart rate variability in people with CFS, 2018, Parker et al

    The difference in HRV between controls and most patients is explained by lower levels of fitness and activity levels. The fact that HRV was normal after warm water immersion suggests there is no fundamental autonomic dysregulation. It's interesting how the same set of results can lead to two...
  16. Snow Leopard

    Concerns about Cochrane

    Exactly. Peter was terminated for two reasons: He was openly criticising and thus hurting the perception of the brand. He was openly criticising the organisational structure of Cochrane itself. Cochrane is becoming a rubber-stamping exercise for the medical establishment, nothing more. There...
Back
Top Bottom