Search results

  1. Snow Leopard

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Yes, it is important to consider their mindset. Psychiatrists consider the mind most important, that is to say the most important thing is to have the patient to say they are better (at least somewhat). It does not matter if the patient is still ill and that their thoughts saying they are...
  2. Snow Leopard

    Video clip of a Australasian conference on MUS, mentions ME.

    Gather a lot more data about the practises, attitudes, knowledge and patient outcomes in standard practise (in a way that doesn't allow those physicians to report in a deceptive way). I'm proposing a lot more study of physicians themselves. Physicians should be experimented upon, not just patients.
  3. Snow Leopard

    Video clip of a Australasian conference on MUS, mentions ME.

    from: racpcongress com.au/speaker/ms-megan-mcewen/ www racp edu au/docs/default-source/events/congress-2019-presentations/racp-tues-7-masterclass.pdf?sfvrsn=619a181a_2 www meganmcewen co nz https://web.archive.org/web/20190130090302/https://www.meganmcewen.co.nz/what-is-cfs...
  4. Snow Leopard

    Video clip of a Australasian conference on MUS, mentions ME.

    Here is the "latest thought from Europe": https://www.sciencedirect.com/science/article/pii/S2213158219301482 The above review shows a striking lack of evidence of markers in the brain that are constant across functional disorders. I also think there is clear bias in the brain regions he has...
  5. Snow Leopard

    Video clip of a Australasian conference on MUS, mentions ME.

    He uses those in the same way as SW: It's others describing such patients as those things, honest! I'm the one with the empathy for patients and telling patients their illness is real!
  6. Snow Leopard

    Video clip of a Australasian conference on MUS, mentions ME.

    https://www.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=12136294 https://www.nzherald.co.nz/index.cfm?objectid=12173126 "Managing Difficult Encounters Chris Kenedi M.D." http://www.gpcme.co.nz/pdf/2016 North/Thur_Room7_0830 Difficult pt and the brainGP CME 2016.pdf
  7. Snow Leopard

    Video clip of a Australasian conference on MUS, mentions ME.

    My sympathy disappears when I discovered that most GPs don't bother regularly reading any peer reviewed research at all. I have asked doctors in many different social contexts and they all give the same answer - only doctors who do research, subsequently read research regularly. These GPs...
  8. Snow Leopard

    A general thread on the PACE trial!

    Yes, but not enough on its own. If she then reported that she had to spend the rest of the week in bed, it wouldn't exactly be considered a success.
  9. Snow Leopard

    Trial By Error: The Lightning Process Is “Effective”? Really?

    War, violence, poverty, illness. None of it is a problem if we choose not to care. ;)
  10. Snow Leopard

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    It's not a waste of time, it does not detract from the other problems unless we let it distract us.
  11. Snow Leopard

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    One topic that seems to be doing the rounds is the idea that because the symptoms are now potentially explained by CCI that people with this illness never had "real ME". I think this is a distortion of what most people were saying and it is damaging to perpetuate these accusations. Those...
  12. Snow Leopard

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    June 13th Editorial Biopolitics, psychosomatics, participating bodies - Monica Greco https://mh.bmj.com/content/early/2019/06/13/medhum-2019-011717 This is part of the overall project: www dot crassh.cam.ac.uk/events/26189 Still no sign of Sharpe...
  13. Snow Leopard

    Cognitive Impairments in Fibromyalgia Syndrome: Associations With Positive & Negative Affect, Alexithymia, Pain Catastrophizing.., 2018, Duschek et al

    The study is notable for making hundreds of statistical comparisons without using any sort of corrected alpha... https://en.wikipedia.org/wiki/Multiple_comparisons_problem They acknowledge it, but didn't bother to fix the problem... Amateur hour anyone?
  14. Snow Leopard

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    For balance (balancing out all the years of all-male panels), he should resign and adopt a 100% women panel policy in the NIH for a few years. ;)
  15. Snow Leopard

    Questionnaire to see what different people in the community Hope from the UK MRC

    The goal is to build research capacity - if they claim there is not enough applications to provide as much funding as the disease burden demands, they have to ask themselves why and address those concerns directly.
  16. Snow Leopard

    Aptinyx stock soars on positive Phase 2 results for its fibromyalgia treatment, June 10, 2019

    Remember wall street 101: Buy on rumor, sell on fact. 12% is a small move for a stock like this. Also, realise that their shares were worth at their peak, $32.25 last September..
  17. Snow Leopard

    From neurasthenia to post-exertion disease: Evolution of the diagnostic criteria of chronic fatigue syndrome/myalgic encephalomyelitis, 2019, Murga

    The article is basically a narrative review of the various names and clinical definitions for CFS over the years. The article doesn't really delve into etiology nor treatment. Google Translate conclusion:
  18. Snow Leopard

    Gravity-induced exercise intervention in an individual with CFS/ME and POTS, 2019, Ballantine, Srassheim, Newton

    Surprising how different the results were across the other patients vs the one they cherry picked for this "case-study".
  19. Snow Leopard

    The Timeline of Post Exertional Malaise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2018, Nielsen, Hodges

    I don't think Vermeulen can publish the data on that slide, because it is just routine clinical data and was not collected as part of a study with ethics approval. There was another Vermeulen study that may be relevant to this discussion too...
Back
Top