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    What I’ve learned reporting about Lyme disease, a contested illness - David Scales

    I am transparent about my leanings when I write about Lyme. I make no bones about being biased based on my readings and experience. I also have reviewed (and, from time to time, critiqued) articles and opinions and studies of people who disagree with me. We may not see eye-to-eye, but I...
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    Measuring fatigue. Discussion of alternatives to questionnaires.

    I am like this, too. To measure correctly any deviation, you'd need a baseline, and imo you'd need to approach our brain PEM as episodic, not unlike one would try to assess calcium or potassium levels in PP patients before and after episodic attacks. Easier said than done. I seem to remember...
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    Who said: 80% of ME is post-infectious

    I'd caution not to conflate post-infectious with solely following acute illness. There is nothing to say that gradual onset is not also post-infectious.
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    What I’ve learned reporting about Lyme disease, a contested illness - David Scales

    Mary Beth Pfeiffer, if I recall correctly, was nominated for a Pulitzer for her reporting on Lyme disease. Edited to add: @Snowdrop 's link is to what appears to be a book review by Scales of a book about Lyme written by Mary Beth Pfeiffer. The review does not seem all that impartial to me...
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    What I’ve learned reporting about Lyme disease, a contested illness - David Scales

    Agreed, but if you are going to deliberately bring up RCTs in the Lyme world, and you are positioning yourself as an impartial writer, hadn't you better qualify the exception that Lyme presents to the RCT rule of thumb? Agreed. That does not help as to whether this piece was written with an...
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    What I’ve learned reporting about Lyme disease, a contested illness - David Scales

    Fair enough. A couple points: 1) If I am reading his credentials correctly, the author is not just a physician. He is a sociologist as well. Which hat did he don for this piece? 2) His wording seems odd to me for a claim of impartiality. For instance, "...a strong majority of physicians and...
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    What I’ve learned reporting about Lyme disease, a contested illness - David Scales

    Aside from the feel-good references to ME/CFS and David Tuller, does this seem like an unbiased perspective?
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    Study from Denmark linking infections to mental disorders

    The organ impacted that manifests as mental disorders would be the brain, even if the microbiome is, in part or whole, the root culprit. I'm not sure if the study identified the infections. I would have found that insight interesting.
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    Study from Denmark linking infections to mental disorders

    "Treated infections" do not necessarily equate to eradicated infections. I'm not sure we have a handle on what havoc disease chronicity levies on the brain.
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    OMF: A message from Ron Davis (two Stanford engineering researchers added to their team)

    I hope they are taking a close look for babesia d and strains of bartonella not on the radar, especially where they are in California. Both are notorious for their inclination to inflict damage from within erythrocytes and endothelial cells; both can be devilishly difficult to trace. Moreover...
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    Hand grip strength as a clinical biomarker for ME/CFS, 2018, Nacul et al

    Because we do not yet have a useful intervention, I am concerned that until we do, potential good tools such as this can be used against us as blunt instruments to discredit our valid experiences. History is not on our side. Before MS was fully accepted, would such a test have helped MS...
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    Hand grip strength as a clinical biomarker for ME/CFS, 2018, Nacul et al

    Yes, agreed, but doesn't that presuppose a credibly successful intervention? Yes, ok. But couldn't that lack of change be attributable to the patient if it is exercise-based - which is what I presume is where it would dead-end currently? I would feel better if they had qualified "intervention"...
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    Hand grip strength as a clinical biomarker for ME/CFS, 2018, Nacul et al

    In my eyes, they lost some serious street creds with that line. There are no proven sustained interventions across the ME community.
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    Golden hour (/month)

    Is our brainstem hardwired into the seasons? If this is autoimmune? Oh! You were suggesting that?!? Very cool and my bad.
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    Golden hour (/month)

    Awesome. Validating. Not me, though. There is an argument, though, that I would be worse without the Vit D supplements. So, fair enough. I think you are sooooo smart, and such an advocate, but I'm not buying this for a nano-second. :)
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    Golden hour (/month)

    One of the main reasons I don't post as often as once is I have issues with clarity. I apologize. First, the rooster thing is a famous thing about not conflating an occurrence with a cause, ie the rooster does not cause the sun to rise even though there is a strong correlation with its...
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    Golden hour (/month)

    Are you perhaps just leveraging north values that may be meaningless to tissue? I ask this question sincerely, as I have not explored it much. But I do not trust historical dogma as much as I once did. Clearly you have done your homework. Impressive.
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    Golden hour (/month)

    I'm still a little concerned about the rooster thingee.
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    Golden hour (/month)

    I am learning a lot this cool day.
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