Search results

Unless you don't buy into the sun is supplementing our Vit D, so when it gets cold, we go out less, and by extension our Vit D values decline. Broadly speaking, for the healthy or acutely sick, sure. For those beset with chronic illness like us, I'm not so certain I get access to the sun any...

Yes. How odd. I am usually on guard for cold, as it is a trigger for many with periodic paralysis, which my wife has. Moreover, I have little tolerance for cold. But almost without fail, late Autumn brings a semi-reprieve in my symptom severity. Not sure if it's a rooster raising the sun sort...

Is it? Maybe it's just being from the US that, these days, I am more wary of potential hyperbole.

Likewise, I'm fairly certain my Dyson vacuum cleaner will provide unprecedented, detailed cleaning for my study's rug. It seems like just yesterday that T-3 would prove everything for us.

Perhaps it depends on how you define a fever. Pre-ME, my average baseline temp hovered around 98.6. Now it is closer to 97 on any given day. If I register a 98.6 tomorrow, wouldn't that conform with the idea of a fever? For me, at least, 97 is the new normal temp. But most likely not one of my...

Symptoms that accompany channelopathies often present after prolonged periods of rest. Attacks can range from profound muscle weakness to total paralysis. Sleep is the most frequent form of rest to evoke episodes; patients literally may not be able to get out of bed.

I'm not a doctor, @Creek , but there are a few reason why your daughter might have tested negative for Lyme, not the least of which is she might not have Lyme. When I tested positive for babesia it inclined me to try to get a Lyme Western Blot, and request the band results, to see if I also had...

If your daughter tested positive for Babesia (I'm assuming duncani since you appear to be near California), then you may wish to consider testing her for other tick-borne diseases. If I am not mistaken, pretty much the only ways to get babesiosis are via either a tick bite, or blood transfusion...

Another consideration is that some lesions resolve with abx, and yet neuro issues may persist. Incidentally, channelopathies frequently do not readily manifest in any overt physical abnormality other than that is reported by the patient. If lesion is to imply any physical abnormality, whether...

I'm sorry. I thought you were trying to make the point earlier that neuro symptoms are hard to justify without evidence of lesions. Perhaps I was mistaken.

This is not the same as saying you must have an observable lesion to have a cranial neuropathy. I have an NIH-diagnosed cranial neuropathy with no identified lesion, unless I am confusing my terms, which is certainly possible.

It does to neuroborreliosis. Of course, Lyme Encephalomyelitis is a well-known phenomenon. What perhaps is lessor understood is what happens to Lyme Enceph patients who go untreated or undertreated? More to the point, why should this not be relevant to other diseases whose neuro impacts are...

@alex3619, 18 or more? Or something like that - I may have that number wrong as it just came from my suspect memory. I do know that where I live over 50% of ticks carry more than one pathogen. ETA: The CDC lists 16 tick-borne diseases on its website, but they are missing some I think. One that...

Ok, an encapsulation of some purported issues with CDC 2T: One), Yes, no good early on. You kinda need to wait 30 days or so; Two) The First tier ELISA misses too many cases; some maintain it is as good as a coin toss; Three) Arguably the two most important proteins (ie bands on the Western...

Right, good, but I was asking about Lyme testing. If you are going to point out limitations to Lyme testing, do you offer alternatives to those you try to dissuade from a given test, and do you qualify that gold standard with appropriate limitations? I do not wish to belabor this. I just find...

I find these observations a little ironic given the perception of ME/CFS in many quarters of the world. I wonder if you direct them to a gold standard of testing as an alternative to their alternative, and list the deficiencies associated with that. Depends on the test. Validation is very...

For the same reason @Hip 's enterovirus theory is important. If you can correctly name the thing, maybe it will some day be easier to tame it. Those CSF studies perhaps are simply pointing to different ME/CFS flavors. Also, if a specific disease like Lyme or EBV or Herpes or whatever simply...

The flip side of that might be that the Lyme community is losing patients to ME - and fibro and ALS and MS etc. Likely both things are happening.

I think this is incorrect. Symptomatically, for diagnostic purposes, ME/CFS and late stage Lyme frequently can parallel one another. There are differences (painful joints with swelling, for instance, in some Lyme patients, and of course, the rash thing), but all-in-all a list of symptoms would...

Yes, and we've seen efforts like this in the past, I believe. I drew the line earlier than that, and I have been convinced by some pretty good clinicians that I have Lyme. But I think I appreciate where those patients might be coming from. Diagnostics aside, if you believe you are harboring...