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I see ME/CFS characterized as "illness" and "condition" and, arguably,"problem" Any reason for the seeming aversion to "disease"?

Spurious, ballsy, and dangerous stuff, and I don't mean that in a good way.

https://www.ncbi.nlm.nih.gov/pubmed/29706237?dopt=Abstract The link above is to an abstract of an NIH-backed study that seems to bemoan the nature of patients who, for whatever reason, imagine they have chronic Lyme. Please note the mention of MUS. I find several aspects of this abstract...

We can only hope. My money is on the bulk of doctors willing to actually read it would likely rationalize (internally, of course) the physicians discussed as outliers to their population. But my faith in doctors is not exactly high anymore, so there is that...

https://academic.oup.com/acn/advance-article-abstract/doi/10.1093/arclin/acy051/5045218?redirectedFrom=fulltext The link above connects to an abstract of a study headed by John Aucott. The topic is Post Treatment Lyme Disease Syndrome. Many within the Lyme community believe this is a...

https://www.amjmed.com/article/S0002-9343(17)31290-1/fulltext The above is authored by Phillip Baker, in the June 2018 edition of The American Journal of Medicine. I believe Baker is a predecessor of A. Marques who currently heads the NIH Lyme Team. You will recall that Marques is an integral...

:thumbup:

As I mentioned in the other Ron Davis thread, I cannot help but notice the link an HLA theory would have to an area Mark Davis is well-versed in, so I wonder if we are perhaps seeing his influence here, at least a bit.

I wonder if we are seeing Mark Davis's influence here. He would be very familiar with the HLA connection to Allen Steere's theory about the origin's of arthritis refractory to treatment in some Borrelia cases. That is a very specific HLA connection, of course - HLA-DR4 - and presumably there...

Perhaps a pleasant, inadvertent byproduct might be a funneling of research dollars into channelopathies - today horrifically underfunded, not unlike ME/CFS?

Lipkin is doing a panel. Pretty cool stuff, in theory. He's got Brian Fallon working on it, too (Fallon used to be a darling in the Lyme advocacy community). Not sure how much it improves accuracy issues, but I like getting multiple pathogens tested for in one test. Tick-borne diseases come in...

This is a very good article, but it - in my opinion - still may stumble on phrasing provided by mainstream Lyme. For instance: "Widely accepted studies have found that about 10-20 percent of those treated for Lyme are left with lingering symptoms" "Lingering" symptoms? Why not just say in...

John Halperin? Imagine asking Crawley to weigh in on whether ME/CFS is purely a biological disease that rarely is curable.

Pretty good article. As a rule, I try to avoid talking about chronic Lyme. It's better and simpler and clearer and less controversial to talk about late stage or tertiary Lyme, just as one would syphilis. What most probably don't realize is there has been an active campaign to delegitimize the...

I'm not clear on how using an MRI to try to qualify pain would be any more successful than using an MRI to measure IQ. MRIs will demonstrate activity in both, but qualifying discrete levels may be a ways off. 54-Tesla or such...

@Starlight , in theory you could have both. I have been diagnosed with both. But there is no way to definitively prove it. Not yet at least. There are clues, though. For example, PEM is fairly peculiar to ME/CFS. Odds are if you suffer from PEM you've got ME/CFS. Joint pain without swelling is...

My understanding is magnesium deficiencies are associated with chronic disease (and often, by extension, inflammation), much like Vit D deficiencies. Magnesium deficiencies are common place in Lyme, for instance, but that is in part due to Borrelia pretty much being the only bacteria that shuns...

According to the authors, 10 of the 12 culture positives were positive on either an IgM or IgG Western Blot (Table 2). Not sure about the ELISA; that data might be folded into the case studies. Moreover, I'm not sure if these are Dearborn bands, ie, I'm not sure if these comply with the 10 bands...

I think this is a fair assumption, but not necessarily completely correct. An example, although not metabolic, might be body temp. Many pwME have low temps. Who even looks for this in major studies, at least as a rule? This should stick out, but it does not. Just because we fall out of range...

"...measuring metabolic biomarkers that recent studies have found are predictive of future risk..." Not sure these biomarkers in general and specifically are relevant to ME/CFS. Chronic disease is a disparate group, arguably connected often through the word "chronic" only. Moreover, these are...