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@Jenny TipsforME , there are not a whole lot of competent PP experts out there, and even less with any budget. Do you know when the last ATS research by the NIH was performed? YEARS ago. But I agree - that's likely the way to go. That private email thing that Periodic Paralysis International...

@Marco , PP can be inherited or acquired, from what I understand. Symptoms can appear early in life or later, even when inherited. My wife was born with certain PP characteristics, but most of the more serious ones appeared after she was an adult. Also, even though it is referred to as Periodic...

Most neurologists don't know anything about PP even though it falls within their domain. How many neurologists are competent about ME/CFS? The only "expert" I can think of that is a neurologist would be Natelson. Even when it comes to POTS, most of us get referred to an electrophysiologist...

There was another thread on PR and the idea of a sodium channelopathy came up briefly because of something to do with sodium...I think it had something to do with Davis?...I'm sorry, my memory...But like you I too have wondered if somehow at least a subset of pwME triggered a channelopathy...

@Jenny TipsforME , my wife has PP, and I also see striking similarities between many of her symptoms and those of other PP patients with symptoms of pwME. BTW, there is a special PP patient association through Periodic Paralysis International. My wife is part of it, and the info she gets is...

I wonder how atypical these results are. What's to say that anything from MS to the flu isn't influenced by gender?

Some of us are animals.

Fair enough, but who cares? What is driving the behavior is symptoms. It is a dangerous slope. Yes, but what is behind the behavior? Again, we get one logical step behind with this approach, and it plays into the hands of people we do not agree with - at least potentially.

I think you are conflating symptoms with behavior. Behavior is observed. Symptoms are experienced. The concept of sickness behavior serves a purpose, certainly, but it can also be dangerous to us by virtue of its nature as a function of observation.

The concept of sickness behavior is predicated on problems with communication. It is no surprise the idea was promoted by a veterinarian. In a way, embracing sickness behavior as an approach can be argued to be little more than creating distance between a patient and doctor. As a patient, when...

If my memory is right @Helen , either Mark Davis or Ron Davis used the CeroNanotrap in one of their studies. I was very pleased to see that because most study efforts in the US stick to the 2T when looking for Bb in a cohort. My ID is also involved in trialing a version of the ELISPOT. More...

In acute encephalitis perhaps. But in chronic brain infections, I'm not sure this is always the case. I know there are bacterial infections that may not present on an MRI, but whose presence can be demonstrated with a CSF exam. I am not clear on why it should be any different with a virus, but I...

Screwed up sleep is pretty much definitional. I wouldn't make a big deal out of it...

Oh, I suspect they may still need to resolve late stage issues - that's what in good measure undermined recent direct metrics, and, of course, pretty much sentenced to failure many historical offerings like PCR and other direct antigen wannabees. Hopefully I am wrong about that.

Thank you @Helen , We are making progress, as this test evidenced - as does the lawsuit against the IDSA and its authors...as does the new LYME working committee...as does...Well, progress is often a slow beast, but today a cattle prod is at play.

The mechanism at play is the issue. One is for interpretation; one is for more than that.

It's one step further removed from the patient. As such, it is potentially dangerous, especially in today's insurance climate.

Not quite accurate. High levels MAY just indicate a past infection, but not necessarily. In a natural explanation, elevated IgG values may simply suggest a past infection or exposure. However, there may be a more fundamental or common sense alternative. Some believe high IgG levels may...

As I recall, there were a couple fMRIs that participants had as part of the study protocol. I wonder if a second study from Baraniuk's team will be forthcoming more specific to the fMRI results. START appears to be simply POTS triggered by exercise - did any CFS subjects satisfy START...