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For those who can't see the tweet, it is of a poster presentation of the results from a study into risk factors for Long Covid. "*Important long Covid study results from Scotland:* Researchers followed up 1.1 million people after Covid to see if anything reduced the odds of #LongCovid & found...

I understand why they are used but the problem with standardised doses of exertion in research of pwME is that different levels of exertion will have different effects, depending on how seriously, or not, each participant is affected and their normal activity level. Particular towards the mild...

The authors biases?

So questionnaires that ask, in part, about fatigue, are found to be good indicators of.... being fatigued.

Objectives The study aimed to evaluate the level of fatigue and the relationship between mood, pain, fibromyalgia, insomnia, disease activity, and dryness with fatigue in primary Sjögren’s syndrome (PSS) patients. Patients and methods In this case-control study, the participants were recruited...

ABSTRACT Objective: To quantify and compare associations and relationships between self-rated and tested assessments of mainly mobility-related physical function in different diagnoses. Design: Six longitudinal cohort studies before and after inpatient rehabilitation. Patients: Patients with...

Trial By Error: Dutch Survey Respondents Rate GET/CBT as “the Worst” Approach, Per New Report "A survey of more than 1500 patients in the Netherlands with a diagnosis of ME, CFS or ME/CFS rated graded exercise therapy as “the worst” interventions, according to an article on the site of the ME...

The protocol says that recruitment will last until end of Q2 2023 so I doubt that this is still open.

Abstract The severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) virus has been at the forefront of health sciences research since its emergence in China in 2019 that quickly led to a global pandemic. As a result of this research, and the large numbers of infected patients globally...

We haven't publicly announced an update - while we are seeing a steady stream come back to us there is still the best part of that 4k yet to be returned. Sharing our social media posts, where possible, may get repetitive but it's broadly speaking the only tool we have at this stage. We are...

Coming soon – DecodeME’s Second Questionnaire We wanted to give you a quick heads-up on our plans for a second questionnaire. We would like to thank all participants for their amazing help to date and to ask for their continuing support with this additional activity. All existing...

For those who can't see the tweet, it is to this, Excess mortality in England post Covid-19 pandemic: implications for secondary prevention, 2023, Pearson-Stuttard et al "Many countries, including the UK, have continued to experience an apparent excess of deaths long after the peaks associated...

"ME/CFS was diagnosed based on the Institute of Medicine (IOM) criteria [32] which define that following three symptoms and at least one of two additional manifestations are required for diagnosis. The three required symptoms are: (1) a substantial reduction/impairment in the ability to engage...

Personally I hope very much that research moves on from "immediate PEM" and puts far more focus on the delayed response. It is simply the same response that someone healthy but sedentary might have if they exerted themselves to the same extent that patients do, relative to their available...

Published papers thread for w/c 27th Nov Facebook: https://www.facebook.com/sci4me/posts/pfbid0UhkFp87Z6n3VWsedHiwEwPBtpSGWMtZXETVrvREQodvRMNGujC1jCvWzPJe5kyYel Mastodon: https://med-mastodon.com/@s4me/111521501521509086

News in Brief posts for w/c 27th Nov Facebook: https://www.facebook.com/sci4me/posts/pfbid02rixTNdZTGhUZ8o6jbfBzPq1CwqaSxxicwjdPqZyEiSzV2GoyUjtXcrPZTBrsfRwol Mastodon: https://med-mastodon.com/@s4me/111516236335473046

Objective There is evidence of a strong association between insomnia and COVID-19, yet few studies have examined the relationship between insomnia and long COVID. This study aimed to investigate whether COVID-19 patients with pre-pandemic insomnia have a greater risk of developing long COVID and...

NB: All authors are from McMaster Uni, Canada. Background Somatic symptom disorder (SSD) presents challenges to the healthcare system, including frequent medical visits, lack of symptom relief experienced by individuals with this condition, high associated medical costs, and patient...

November News in Brief posts on Reddit https://www.reddit.com/r/cfs/comments/1889pas/news_in_brief_posts_for_november_2023_covering/

Full title: “Somewhere Between an Actual Disease and a Disease”: A Grounded Theory Study on Diagnosing Functional Neurological Disorders From a Multi-Informant Perspective Abstract Functional Neurological Disorders are characterized by sensory-motor or cognitive symptoms. Recent research has...