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"We need to raise $350,000 for our Rapamycin pilot trial! We're not funding drug costs, but we're testing biomarkers 4 times per enrollee. And autophagy markers make this study unique! On #GivingTuesday put your donation on #ME treatment trials!"

All your post says is Oxford - Karl is in Oxford.

Karl Morten? Caroline Struthers?

Published papers thread for w/c 13th November. Facebook: https://www.facebook.com/sci4me/posts/pfbid02zXBuAt3UNjTXcEUpeF9KU2SP4yoD1DQgJwMqvRyb4351STASNKkFu8D2URrbwXs1l Mastodon: https://med-mastodon.com/@s4me/111442382593068196

Here I am talking about payments to people who, for example, fill in a questionnaire, donate a sample or in any other way participate in a research study. The poll is there if you want to provide a quick for, against or "it depends" answer - if you do answer "it depends" in particular I'd be...

Social media posts for the new petition update Facebook: https://www.facebook.com/sci4me/posts/pfbid0MfjDX1zS5coSe73nG6bZj93DcnfgKiYSvM1EhG8n49CtMdfa8oBgKZ6d7meTnAqCl Mastodon: https://med-mastodon.com/@s4me/111437291112280979

9,505 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

Full title: Validation of symptom measures in patients under investigation for postural orthostatic tachycardia syndrome (POTS): The Orthostatic Grading Scale (OGS) and the Symptom Screen for Small-fiber Polyneuropathy (SSS) Highlights More standardized symptom reporting is needed in Postural...

News in Brief posts for w/c 13th November Facebook: https://www.facebook.com/sci4me/posts/pfbid0cCpZ2gf577VcQ2xPwrcKmbzyX9piEgo33puRBd8LKKsbyc8AS1wuHRVrmQtF1nSl Mastodon: https://med-mastodon.com/@s4me/111436754778396830

Background Sarcoidosis patients who develop severe clinical phenotypes of pulmonary fibrosis or multi-organ disease experience debilitating symptoms, with fatigue being a common chief complaint. Studies investigating this patient-related outcome measure (PROM) have employed the Fatigue...

Now published, https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-023-04711-5

What a joke. Until they use the same tests in other energy limiting conditions they have no idea whether what they propose allows for accurate diagnosis or not. Also, the cohorts were mismatched, 85% female compared to 25.5% female, so there is the possibility, that they don't discuss, is that...

$39,133, 60% of target 12 days left https://crowdfund.berkeley.edu/project/40018

9,499 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

Neglected to cross-reference that this editorial is quoted in glowing terms as part of the Royal College of Paediatrics and Child Health's 'Perplexing Presentations (PP)/Fabricated or Induced Illness (FII) in children' guideline

"Medically Unexplained Symptoms (MUS) In Medically Unexplained Symptoms (MUS), a child’s symptoms, of which the child complains and which are presumed to be genuinely experienced, are not fully explained by any known pathology. The symptoms are likely based on underlying factors in the child...

The size of the problem? Functional symptom disorders—often termed ‘medically unexplained symptoms’—are being increasingly recognised as a major source of distress, confusion and—not least—cost. The 2016 Kings Fund report—‘Bringing Together Physical and Mental Health’—estimated that the National...

I've started a thread on the guideline itself here, UK: Royal College of Paediatrics and Child Health: Perplexing Presentations (PP)/Fabricated or Induced Illness (FII) in children Not sure I would agree that the guideline "actively suggests" ME/CFS (and other conditions) may be alerting signs...

Background Since the publication of the Royal College of Paediatrics and Child Health (RCPCH) guidance on Fabricated or Induced Illness by Carers (FII) in 2009, there have been significant developments in the field. The RCPCH Child Protection Companion 2013 extended the definition of FII in 2013...

Trial By Error: Cochrane Ends Silence on ME/CFS Exercise Review Developments "I recently posted about Cochrane’s unsatisfactory responses to a request from the Science for ME forum that the organization withdraw “Exercise therapy for chronic fatigue syndrome.” a seriously flawed and unreliable...