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Search terms used: Medically Unexplained Physical Symptoms Medically Unexplained Symptoms Non-organic Somatisation Somatization Fibromyalgia Chronic pain Chronic primary pain Functional Pain Chronic fatigue Chronic fatigue syndrome Chronic widespread pain Myalgic Encephalopathy Myalgic...

"A HUGE thank you to the more than 26,000 people who completed the questionnaire and over 21,000 people invited to provide DNA (receipt of samples closes on 31 January 2024). We believe we will be able to run a high quality analysis on this size of cohort."

True, but if patients could provide evidence, if it exists, that clinics aren't following the guidelines then there might be value in that.

This was highlighted on Twitter

About us We aim to be the global leader in professional, high quality healthcare safety investigations. We investigate patient safety concerns across England to improve NHS care at a national level. Our investigations do not find blame or liability with individuals or organisations. Information...

And these minutes have now been approved.

Carol Monaghan, in a short video, reporting on the latest APPG Facebook link in case the Twitter one doesn't work for you, https://fb.watch/olZplYjOy1/

$33,296, 51% of target 14 days left https://crowdfund.berkeley.edu/project/40018

9,476 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

Now published, https://jnnp.bmj.com/content/early/2023/11/13/jnnp-2023-332364

As soon as is possible, and as long as is needed. And I appreciate that is an unhelpful answer but we need everybody who is sent a spit kit to return it, the saliva to be extracted and readied for DNA extraction, the prepared samples to be shipped to Denmark, the DNA to be extracted from the...

And recruitment is now closed! Thank you so much to everyone who took part, and also to everyone who shared details of the study, helping us to reach as many people as possible.

Some people on social media are reporting that they are still seeing a message that our website is down for maintenance. We can confirm that this is not the case, what you are being shown is the old version of the website (for technical reasons your browser is trying to be helpful by not...

I'm assuming "RMDs" probably means "Rheumatic and Musculoskeletal Diseases", as it isn't explained. Priority #9, "What treatments are effective against fatigue?"....

Introduction Monitoring muscle metabolic activity via blood lactate is a useful tool for understanding the physiological response to a given exercise intensity. Recent indications suggest that skeletal muscle oxygen saturation (SmO2), an index of the balance between local O2 supply and demand...

Abstract Pompe disease (PD), also defined as acid maltase deficiency, is a rare autosomal recessive disease that causes glycogen accumulation due to a deficiency of the lysosomal enzyme acid α-glucosidase. An excessive amount of undisposed glycogen causes progressive muscle weakness throughout...

Reminder, today is the last opportunity to take part if you haven't already.

$29,825, 45% of target 16 days left https://crowdfund.berkeley.edu/project/40018

PubMed listing, https://pubmed.ncbi.nlm.nih.gov/37933009/

I'm not sure how on-topic this comment will be, but I'm aware that I limit, or at least try to, how much emotion I feel, both positive and negative, given how much energy emotions cost. I suppose that could be argued to be a management strategy, or even pacing. All I know is that I can achieve...