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OK, this has been unhelpfully occupying headspace for me so I'll say this and then hopefully be able to move on to more helpful and positive things. I think more than one thing can be true. I think David Putrino is working in a way that he perceives to be in the best interest for his patients...

I missed this bit from looking at his Twitter thread earlier today. This follows directly on from the quotes I have posted above "made in response to a terrible recent publication that basically asked the question: is #LongCOVID just fibromyalgia? From our data of >2000 LC patients, about 70%...

Recruitment closes this week, Weds 15th at 5pm. If you haven't taken part yet, you have until then to complete the questionnaire at www.decodeme.org.uk/portal/. If you are a participant and were asked for a DNA sample, but have lost your sample kit then you have until then to request a new...

$24,675, 37% of target 17 days left https://crowdfund.berkeley.edu/project/40018

It's an attempt by Putrino to explain himself further. This seems to be the core of his argument "The intention of this tweet was not to suggest that we would WITHHOLD a diagnosis from anyone, rather to say that we will not be automatically diagnosing everyone with #LongCovid who meets #MECFS...

Published papers from w/c 6th Nov Facebook: https://www.facebook.com/sci4me/posts/pfbid0XGhPmyfKtNtY7YFXMnK5EfcdZsHRbdCXQZcweqqYfojzRwYKLGWmbP8iGyufMMfsl Mastodon: https://med-mastodon.com/@s4me/111402626353504204

Social media post sharing the petition update. Facebook: https://www.facebook.com/sci4me/posts/pfbid03vRLYE8sKVjSRb7TwXoRcRoRo2Q11Cr8RgPaEPhti87rc1LcRYngPebXWptM2PKdl Mastodon: https://med-mastodon.com/@s4me/111402377193321702

9,431 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

More 'clarification' from Putrino An MD, Azola Alba, replying to him "I disagree with withholding a diagnosis of ME from a LC patient. There is clear diagnostic criteria established and we should be building on the decades of work and not reinventing the wheel. Not all Long COVID patients meet...

Anecdotally, this kind of attitude towards an ME/CFS diagnosis is quite common in the UK, and is part of why DecodeME has struggled to recruit more post-Covid ME/CFS patients than we have. I suspect that a large part of it comes from the clinician knowing the stigma around the ME/CFS diagnosis -...

Twitter thread from Putrino explaining why they will not diagnose ME/CFS post-covid. "provide care and conduct research for people with infection-associated complex chronic illness, starting with #LongCOVID, #MECFS, #EDS and chronic #Lyme hoping to include more conditions over time. However...

Insurance companies, as we know, can employ scientists. "Who can register for access to the UK Biobank Resource? The Resource is available to all bona fide researchers for all types of health-related research which is in the public interest."...

Well, it doesn't say that. The phrase is actually "promising they will not try to identify participants", so they are having to promise not to "try to identify participants". And that is more encompassing than promising not to identify participants, where they would only be in trouble if they...

"Keeping your data secure We take data security seriously, as your contribution is enabling discoveries that will improve the health and day to day lives of millions of people. We separate your details from the information you provide about yourself almost as soon as those data are collected...

News in Brief posts for w/c 6th Nov Facebook: https://www.facebook.com/sci4me/posts/pfbid0xeQs1tq6kwrfqdnTu2YSzF7FDNKVCFV63t9nk43QCnaieCo2FHZ3McpfQUwm4vR9l Mastodon: https://med-mastodon.com/@s4me/111397324069376409

Trial By Error: Yet More Stupidity from the Dutch CBT Fan Club "As I pointed out last month when I reviewed a ridiculous study of “psychosomatic therapy” for “persistent somatic symptoms,” the Dutch psychologizers can’t seem to stop churning out poor-quality research purporting to support...

The article is now titled, "What Tony Fauci Told Me About Long COVID and Other Postviral Illnesses"

What a strange way of defining ME/CFS.

"The study defined CFS as ICD-9-CM 780.7 and ICD-10-CM G93.3, R53.8." ICD-9-CM 780.7 being "Malaise and fatigue", ICD-10-CM G93.3 is "Postviral and related fatigue syndromes" and ICD-10-CM R53.8 is "Other malaise and fatigue".

Abstract Background: Body-oriented mentalization based therapy (L-MBT) is used in specialist mental health care for the treatment of patients with somatic symptom disorder or functional neurological disorder. L-MBT focuses on increasing awareness of bodily sensations and integrating them with...