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Abstract Objectives To describe the clinical profile of a sample of Saudi patients with Functional Neurological Disorder (FND). Method A retrospective review of charts of FND patients seen from 2021-2023 at a neuropsychiatry clinic at an academic tertiary care center in Jeddah, Saudi Arabia...

Participants were all users of a particular app. "Study Design LISTEN is a cross-sectional study that collects participant-reported, participant generated, and clinical data. Deep immune phenotyping is carried out for a subset of individuals, which involves comprehensive profiling of immune...

"exercise intolerance" is not "well characterised" if existence of PEM is not investigated, as does not seem to be the case here - I certainly couldn't find any mention of PEM/PESE in any form.

$16,239 raised, 24% of target, 20 days left https://crowdfund.berkeley.edu/project/40018

9,424 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

Well, sure, I get that but I don't get the argument that because that happens there shouldn't be an attempt to formalize PEM with a diagnostic code.

So don't have a code for PEM because Nath can't get his head around how different patients might describe their experiences? I guess then we should remove the definitions of PEM from the various criteria based on the same reasoning - those pesky patients just refuse to describe their symptoms in...

Thanks for taking part, and for giving two samples. Obviously the important part is that you received confirmation that your second sample was received at the UK Biosample Centre. The extraction process there isn't running as quickly as we would like but it is running, so I am confident that you...

"Mistrust of functional diseases like ME" Functional? In the sense of FND or does the original word mean something different?

Richard Horton on the UK's Covid enquiry, "A former minister for health in England wrote to me that “The COVID-19 inquiry will make us the laughing stock in the eyes of the world.” But it is worse than that. The level of criminal incompetence exposed by recent witnesses to the UK COVID-19...

Frankly, I think that Cochrane owe it to the community to publish the details of the complaint, given that while they talked endless about how to deal with it, they paused progress on the update and went radio silence.

I have no understanding why receiving a complaint then should mean that you shut all communication down completely. And that it should take "multiple committees" to eventually reach a decision show how dysfunctional Cochrane obviously are.

Manages to avoid talking about ME/CFS as much as possible while still talking about "post-viral fatigue" "2.3. Diagnosis and treatment of post-viral fatigue There are no agreed-upon diagnostic criteria for post-viral fatigue. The diagnosis is typically made when fatigue is preceded by a viral...

Background: Fatigue is a main or secondary reason for 10–20% of all consultations with a primary care physician. Methods: This review is based on pertinent publications retrieved by a comprehensive, selective literature search on the epidemiology, etiology, and diagnostic evaluation of fatigue...

Thanks, don't know why I put Sweden. I'll change it.

Update on access to the DecodeME questionnaire next week, posted on all our social channels. "Our supplier has told us that essential maintenance work will occur on 14 November between 7.30pm and 10.30pm. This is outside of our control. You will not be able to access the DecodeME questionnaire...

And on a scale of 1 to 5, how would you rate that suffering???? ;)

Gatekeeping and bias how? All members are free to start a thread about anything that fits within the forum's remit and the rules that all members agree to abide by when they join. Equally all members are free to express their opinions, again so long as what they post abides by the forum's rules...

Study Overview Brief Summary A Diagnostic Clinic for Functional Somatic Disorders (FSD) has been set up at the outpatient diagnostic center at Regionshospitalet Silkeborg. The objective of the clinic is to support General Practitioners (GPs) by offering early stage diagnostic evaluation of...

Study Overview Brief Summary The complex clinical symptoms of post COVID syndrome, especially chronic fatigue, pose a major challenge to patients and to the health care system and are frequently refractory to therapeutic intervention. There is increasing evidence that a dysregulated post-viral...