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  1. Andy

    UK Government ME/CFS Delivery Plan consultation

    Without the contents of the attachment just sharing the covering email here is pretty pointless.
  2. Andy

    United Kingdom: ME Association news

    Refers to this stuy, Does the effect of CBT for CFS (ME/CFS) vary by patient characteristics? A systematic review and individual patient data meta-analysis, 2023, Knoop
  3. Andy

    News from Cochrane

    List is here of all members, https://community.cochrane.org/organizational-info/people/editorial-board
  4. Andy

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Fall 2023

    $9,514 raised, 14% of target, 24 days left https://crowdfund.berkeley.edu/project/40018
  5. Andy

    Opinion Long COVID: a new word for naming fibromyalgia?, 2023, Xavier Mariette

    Professor Xavier Mariette, Rheumatology Department, Université Paris-Saclay, Hôpital Bicêtre, 78 Avenue du Général Leclerc, Le Kremlin Bicêtre, 94270, France - seems to publish a lot on Sjogren's and Rheumatoid Arthritis...
  6. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    On all DecodeME socials, "Did your cat eat it?" Click to expand
  7. Andy

    Patient perspectives of recovery from [ME/CFS]: An interpretive description study, 2023, Hasan, Busse et al

    Not really, when all authors are from McMaster Uni, and Editor in Chief of the journal is, also, from McMaster Uni.
  8. Andy

    Review Does the effect of CBT for CFS (ME/CFS) vary by patient characteristics? A systematic review and individual patient data meta-analysis, 2023, Knoop

    These are the studies included in their analysis - they say that all used "CDC" criteria (which confusingly they reference as Identification of ambiguities in the 1994 chronic fatigue syndrome research case definition and recommendations for resolution, 2003, Reeves et all). Click to expand...
  9. Andy

    Patient perspectives of recovery from [ME/CFS]: An interpretive description study, 2023, Hasan, Busse et al

    Printed in The Journal of Evaluation in Clinical Practice. Editor-in-Chief, Dr. Mathew Mercuri, Associate Professor in the Department of Medicine, Division of Emergency Medicine, McMaster University Complete editorial board...
  10. Andy

    Patient perspectives of recovery from [ME/CFS]: An interpretive description study, 2023, Hasan, Busse et al

    All authors, including Jason Busse, are from McMaster University, Ontario.
  11. Andy

    Review Does the effect of CBT for CFS (ME/CFS) vary by patient characteristics? A systematic review and individual patient data meta-analysis, 2023, Knoop

    Published in Psychological Medicine, whose editorial board can be seen here, https://www.cambridge.org/core/journals/psychological-medicine/information/about-this-journal/editorial-board Familiar names include Matthew Hotopf, Michael Sharpe and S. Wessely
  12. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    9,304 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  13. Andy

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Long Covid Advocacy reporting on Twitter Garner promoting psuedoscience "Paul flies further down the misinformation rabbit hole In case anyone is wondering please stay away from Living Proof. They occupy a strange corner of twitter that unfortunately includes Long Covid Drs & researchers...
  14. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 30th Oct. Facebook: https://www.facebook.com/sci4me/posts/pfbid0q7nZeWeEadFmrcWdAnfjrgWtbZQousfavYExXnZ1cXDxgrRKfeCDMbjZ94YfLD96l Mastodon: https://med-mastodon.com/@s4me/111362976613702133
  15. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    Do you know if they have completed our questionnaire? If they have, and they received the notification that they have not been selected for the DNA stage then this will not change. We do not reveal the reason why individuals aren't selected, although we will confirm the selection criteria when...
  16. Andy

    Blood T cell phenotypes correlate with fatigue severity in post-acute sequelae of COVID-19 2023

    Abstract Purpose Post-acute sequelae of COVID-19 (PASC) affect approximately 10% of convalescent patients. The spectrum of symptoms is broad and heterogeneous with fatigue being the most often reported sequela. Easily accessible blood biomarkers to determine PASC severity are lacking. Thus, our...
  17. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    9,286 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  18. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 30th Oct. Facebook: https://www.facebook.com/sci4me/posts/pfbid07mkW2LAySTK234PSpDWUXf3aLG8ZBXbQ2RszbMM3vAFyF4XJ2kpf2NEn3QZG6gcml Mastodon: https://med-mastodon.com/@s4me/111357454236794127
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