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  1. Andy

    Do you believe that “viral persistence” is the cause of ongoing MECFS and LC?

    My only beliefs about ongoing ME/CFS and LC are that they are not caused by psychological factors, and that hypotheses such as viral persistence need adequately investigating to either prove or disprove them.
  2. Andy

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Fall 2023

    "I am once again seeking funds to continue my work on ME, ME/CFS, other complex chronic illnesses, and now long Covid. These tax-deductible donations to Berkeley will support my academic position as senior fellow in public health and journalism at the Center for Global Health for the first half...
  3. Andy

    Neuroimaging in Functional Neurological Disorder: State of the Field and Research Agenda, 2021, Perez, Carson, Edwards, Hallet, Stone et al

    Inaccurate Reference Leads to Tripling of Reported FND Prevalence, 2023, Tuller et al "To the editor: An article in NeuroImage: Clinical, “Neuroimaging in functional neurological disorder: state of the field and research agenda” (Perez et al, 2021), cited a prominent paper (Stone et al, 2010)...
  4. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    Indeed, and I and the rest of the DecodeME team appreciate all of the support that you have given our recruitment efforts.
  5. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    9,159 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  6. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Social media posts for the latest update: Facebook: https://www.facebook.com/sci4me/posts/pfbid02tpvhh8jUzjjXLsaxwjooeJQUMEJgVz2KN1WFqSAzqJuazDuuGDZVDUmcJBtyLzbml Mastodon: https://med-mastodon.com/@s4me/111334956442987653
  7. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    DecodeME social media posts - two weeks left to sign up and complete the questionnaire. Facebook: https://www.facebook.com/photo?fbid=856076676520427&set=a.128908609237241
  8. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    Just a note on the use of the wording "well short". Some might take that to mean that we will not be successful if we don't recruit 25k DNA donors, and I wanted to reinforce the message that we already have enough DNA samples in order to run a GWAS, and if we receive samples back from all 20k...
  9. Andy

    International: Science for ME social media posts

    October News in Brief post on Reddit. https://www.reddit.com/r/cfs/comments/17l8tgy/news_in_brief_posts_for_october_2023_covering/
  10. Andy

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    "The next APPG on M.E. meeting with take place on Wednesday, 15 November 2023 from 1.30-2.30pm and we would be grateful if you could invite your MP to attend. The more MPs at these meetings the better the chance of raising awareness of key issues and lobbying for positive change."...
  11. Andy

    A qualitative study of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients’ dissatisfaction with healthcare services, 2023, Melby and das Nair

    Full title: ‘We have no services for you… so you have to make the best out of it’: A qualitative study of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients’ dissatisfaction with healthcare services Introduction People should have access to healthcare services that are effective, safe...
  12. Andy

    PM2.5 exposure, glycemic markers and incidence of type 2 diabetes in two large Indian cities, 2023, Mandal et al

    Abstract Introduction Exposure to fine particulate matter has been associated with several cardiovascular and cardiometabolic diseases. However, such evidence mostly originates from low-pollution settings or cross-sectional studies, thus necessitating evidence from regions with high air...
  13. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    9,141 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  14. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 23rd Oct. Facebook: https://www.facebook.com/sci4me/posts/pfbid02D7Tzhzar9WFdtkt9dUES6hEVB8e5GvnNoPfgykecQ93hip9zh87f2EZVcMSZPzxnl
  15. Andy

    Guardian — Health anxiety can be all-consuming. Accepting uncertainty is an important step

    Two, among a number of, good comments from readers "It is sadly common to see people who are suffering badly with Long Covid (and other chronic illnesses) being diagnosed with somatic symptom disorder. They are then dismissed by multiple health providers as this incorrect diagnosis follows them...
  16. Andy

    Review Prevalence of sleep disturbances in patients with LC assessed by standardised questionnaires and diagnostic criteria... 2023 Chinvararak and Chalder

    Funding statement TC is part-funded by the National Institute for Health Research (NIHR) Biomedical Research Centre at South London and Maudsley NHS Foundation Trust and King's College London. Declaration of Competing Interest TC has grants from UKRI, NIHR and St Thomas' Charity. TC is the...
  17. Andy

    Review Prevalence of sleep disturbances in patients with LC assessed by standardised questionnaires and diagnostic criteria... 2023 Chinvararak and Chalder

    Highlights Sleep disturbances are highly prevalent in long COVID-19 patients. Sleep disturbances include poor sleep quality, insomnia and excessive daytime sleepiness. It is impossible to know whether sleep problems pre-dated COVID-19 infection. The healthcare sector should provide early...
  18. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    9,120 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  19. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 23rd Oct. Facebook: https://www.facebook.com/sci4me/posts/pfbid0sAAaFrNvY9cDSsDnYUDh9Aqv45PbVD99QMXHX85g7jsWpX2G7LCRi2n9htpyyeNKl Mastodon: https://botsin.space/@s4me_news/111317669760397604
  20. Andy

    Hierarchical Cluster Analysis Based on Clinical and Neuropsychological Symptoms Reveals Distinct Subgroups in FM..., 2023, Maurel et al

    One author is from the Division of Rheumatology, Clinical Unit in ME/CFS and Long COVID, Vall d’Hebron University Hospital, Universitat Autònoma de Barcelona, 08035 Barcelona, Spain, while another is from the Division of Rheumatology, Research Unit in ME/CFS and Long COVID, Vall d’Hebron...
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