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6,563 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

On Twitter, "MEAction UK are delighted to announce that the @JNNP_BMJ are publishing an edited version of our rapid response. Follow the link for more info: https://www.meaction.net/2023/09/19/jnnp-to-publish-edited-rapid-response-by-meaction-uk/"

Introduction This study aimed to provide a preliminary assessment of objective and subjective neurocognitive functioning in individuals with functional motor symptoms (FMS) and/or functional seizures (FS). We tested the hypotheses that the FMS/FS group would display poorer objective attentional...

Trial By Error: A Physiotherapist’s Guide to Understanding and Managing ME/CFS "I recently spoke with two of the four authors about why they wrote the book, how they formed Physios for ME in the first place, and related issues."...

I assume it was this, ‘The Lightning Process’ and chronic fatigue syndrome/myalgic encephalomyelitis, 2022, Vallings

6,432 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

Thank you for all your efforts, but please look after yourself first. As Jo mentions above, we do already have sufficient numbers to run the analysis, but we will continue our recruitment efforts up to the recruitment end date as the more samples we can add to the analysis will both increase the...

Thank you but I don't agree. We don't want Long Covid patients, we want people who have received an ME/CFS diagnosis.

Yes, Trish is right, we do need people to have received an official ME/CFS diagnosis. And also, anecdotally, we have heard that clinicians are reluctant to give an ME/CFS diagnosis following Covid, proven infection or otherwise. And from our FAQ, "I have Long Covid, can I take part? We think...

Abstract We sought to prospectively characterize the nutritional status of adults ≥ 19 years (n = 22, 27% males) and children (n = 38, 61% male) with genetically-confirmed primary mitochondrial disease (PMD) to guide development of precision nutritional support strategies to be tested in future...

Just quoting this bit again to emphasise it, "a scarcity of evidence remains on the effects of exercise on cancer-related fatigue".

Abstract Objectives This systematic review aimed to analyze the effects of different exercise protocols on physical fitness (cardiorespiratory fitness, muscle strength, and body composition), quality of life, cancer-related fatigue, and sleep quality in patients with different types of cancer...

No, this is the first time we have publicised it.

So our target is to receive 20k pre-Covid samples and 5k post-Covid samples. We are closing in on the pre-Covid, at least in numbers sent a spit kit, but things to consider is that not everyone we send a kit to will send it back, and not every kit we receive back will have a viable sample in it...

A factor to consider is that it was only relatively recently that we invited a significant number of additional participants to donate DNA. The "4k haven't returned their spit kit" number therefore potentially includes a range of participants; from those who signed up in Sept last year, to those...

Apologies on behalf of the team for this not being clearer. The "18,000 DNA participants" referred to in August would have been more accurately described as "18,000 participants invited to donate DNA".

Highlights There is growing evidence supporting an association between migraine and functional neurological disorder (FND) seizures. Changes in awareness and vestibular symptoms seem to be more prevalent in functional neurological disorder seizures that are triggered by migraine than those...

If I remember correctly, everybody we send a spit kit to gets two email reminders. Like everything else we have tried to balance things so that reminders get sent out but hopefully not too soon after the participant should have received it. Equally, we only send two, obviously what we hope is...

Email newsletter "Firstly, a big, one year since launch, thank you to everyone who has participated in the study so far. We couldn’t do it without you! We now have some important information to share: We are now in the final stage of participant recruitment and, if you haven’t already done...

Published papers thread for w/c 11th Sept. Facebook: https://www.facebook.com/sci4me/posts/pfbid02jrqsYPasQfVrDcZGx5CZZJ8qWV9SJpy3mWB2QLfu1oZixtPVUbXpq4ukkqRX6eMGl Mastodon: https://med-mastodon.com/@s4me/111085092141651236